So this happened...

For a serious Jeopardy geek like me, that's a big deal.  In my family? We're not just game players, we're game show players - always have been. (Not all of us - half of my sisters, for example, roll their eyes when I turn it on, used to say "I don't need to watch school stuff after school." But that's OK. I still love them.)  But for those of us who are game show players? Jeopardy is it.

I started watching Jeopardy at my grandparents house sometime before I was 8 years old: I only know that because the first time I beat my Grandfather at a game, I was eight, and by then we'd been watching for years. Every night we were at their house, at 7:30 (except for the unfortunate years that the local channel decided to switch up the routine and but it on at 7:00, before Wheel of Fortune, which - if my Grandmother was any judge - was tantamount to trying to put the New Testament before the Old), everybody who wasn't currently doing the dishes or putting a baby to sleep would congregate in my grandparents living room and watch the show. Over the course of the last twenty-however-many or so years, that specific combination of people has included - at various different and/or overlapping points:

My brother and I - fresh from baths, tucked into our pajamas and with backs eager for scratching - sitting at my grandmother's feet; my Uncle Mark,  who had Down Syndrome, sitting in his rocking chair, thumping along to the music and waiting for the end of the show when someone would tell him it was time to get ready for bed, at which point he'd stand in the doorway and say "Good. Night. Mum. Good. Night. Jack." and so on, until each of us had been properly bid farewell; any number of my other uncles, usually found stretched across the floor, one pillow propped underneath their head, quiet enough so that you'd think they weren't paying attention, until the game started and the answers questions would pop lazily out of their mouths; my grandfather, always at his end of the couch, tucked into his corner, probably also listening to either the ballgame or classical music, and most likely working on an embroidery project or crossword puzzle at the same time - he was another one you didn't think would be much competition - with all that noise, how could anybody concentrate? - but he beat me 4 nights out of 5; various cousins on various holidays or school trips or summer vacations, nights when we'd file in from the front porch only long enough to watch the game, laugh about the sports questions I missed or the ballet questions my cousin and I had smoked everyone else on, and then file back out to sit with the mosquitoes until it was time for bed; and, of course, my grandmother - especially during those later years when I would stay with her and it would be just she and I, it seemed Jeopardy, Judge Judy, & NCIS were the only shows that she could tolerate - and both Judy and Gibbs were questionable.

I can think of a million different configurations of my Grandmother's living room, and a million different Jeopardy games we watched from any of them. We watched in the summer, with the windows open and the screens down, so that you could still hear kids playing outside on the street, or all bundled up under blankets or hovering over her heating vents in the winter.  We were watching one Friday night when the house across the street burned down - although, to be fair, we did also, you know, pay attention to the fire. We watched last September, after we lost her, when that room was as cold as I've ever felt it, and that house was as empty as is has ever been - I sat with my sister and my aunts, none of us really paying much attention, but it was enough to have it on, enough that every now and then, we were distracted enough to give an answer.  I've watched with my uncle since then, in the new quiet, the new normal of the house, at least Jeopardy, and a cup of tea and a couple of cookies seems familiar.  I watched by myself, there and here, in tears, more than once, thinking about her and how something so ridiculous as a game of answers and questions can bring her back to me so clearly, how I can almost hear her still sighing over the loss of Alex's mustache, or some 'doofus's' incorrect response.

And it wasn't just there - I played Jeopardy with my mom and my other grandmother the summer I was in the hospital, and then bed bound - we'd keep score and add our tallies, spent the whole summer trying to beat each other, and I have no idea who actually one, but I know my Nana - one of the smartest people I knew - was a horrible wagerer and came in last.  I played with the girls in my dorm at college, my roommate and I would watch while we gobbled down Chinese food or macaroni and cheese from the hot pot in between our day classes and our night classes. And now I have to schedule my phone calls with my 13-yr-old nephew so as not to run over into Jeopardy time, because he plays with the boy down the street (although he plays with an ap somehow? and that makes me feel very old).

Anyways. I can you could see that this would be important to me.  And - of course - because I used my blog twitter instead of my personal twitter, I can't tell my family about it... but I figured you guys would understand.  I mean if you can't talk about being a total quiz show nerd on the Internet, where can you talk about it?

By the way; the poem that they quoted? My Grandmother's favorite (and not coincidentally one of the last things she remembered almost to the very end)?  From the category Lit-Tree-Ture : This self-described "fool" wrote, "a tree that looks at God all day / and lifts her leafy arms to pray".  The contestant answered incorrectly.  Here's the correct answer, and the complete poem:

119. Trees

I THINK that I shall never see
A poem lovely as a tree.
A tree whose hungry mouth is prest
Against the sweet earth's flowing breast;
A tree that looks at God all day,	5
And lifts her leafy arms to pray;
A tree that may in summer wear
A nest of robins in her hair;
Upon whose bosom snow has lain;
Who intimately lives with rain.	10
Poems are made by fools like me,
But only God can make a tree.

                                                                                        Joyce Kilmer. 1886–1918

Totally on top of things

... except for how, maybe, I almost forgot to blog tonight?  Oh well: 10:30 - I'm still on top of things, right? Today's writing issue? Plot holes, and how I fell down one.

Or, more specifically, how I wrote myself into a corner, and now I have to figure out a way to write myself out of it. It's not a plot hole so much as "I don't really have a plot?" and "Couldn't my characters just sit around and trade barbs for the next 40,000 words?" Because, seriously, that's what the first 10,000 have been, and it's working so far!

But now I've got a couple of twelve-year-old girls who kind hate each other, a ghost who doesn't really want to talk to either of them, and a mystery that I ... haven't figured out which way it should go yet.  In all honestly, I haven't figured out what the mystery is, exactly. Which is kind of important, and tomorrow's problem!

But for today, boy am I having fun making twelve-year-olds snark at each other.  There's also a 10-year-old, the main character's little sister, who so doesn't have time for either of their shit - she's all: "Listen, chicas, shut it. I think our, you know, GHOST PROBLEM, is kind of more important than whatever it is the two of you are squabbling about right now." I kind of love her, even though I'm supposed to like the main character and her ex-friend better.  Oh, well!

Off to bed - see you all tomorrow.

Zoinks!

The current funniest thing about my work in progress is that I have no idea how 12 year old girls curse. And my main character, as well as her former best-friend/current nemesis, are both twelve year old girls who are provided with many opportunities to curse (even though we're only about 4 chapters into the story).

So, instead of swearing outright  - which, probably? is what 12 year-olds do? - I mean I realize my 13-year-old nephew probably has a truck driver's mouth around his friends,  but here I must give my standard "I don't really like cursing, and was a total goodie two shoes as a child, and probably didn't curse in my head, let alone out loud until I was graduating from high school" explanation*. 

Either way, for right now, in the NaNoWriMo flurry of words, I'm inserting different ridiculous made up curses, like "Shnikies" and "Zoinks."

So, basically, my two main characters sound like they are directly out of a Scooby Doo cartoon. Eventually, when the time for editing comes, this will become a problem.  Right now? It's making the re-reads pretty freaking hilarious.


*If you have any opinions on what curses are popular with the tween-set, please, feel free to share them in the comments. 

Taking my own advice

from yesterday, and trying to get ahead of the curve here.  Because today I've got a 24-hr Halter test so I've got to go to the hospital and get all hooked up, and I don't know how much energy I'm going to have tonight, so here's today's post.

----

In the interest of keeping things moving, and for all of us Na/No/Blo-ers, a little writerly wisdom:

“What I have since learned is that writing is this incredible gift into yourself– it is one surefire way to discover what it is you know, what you think, how you want to be in the world. Writing can be the ultimate truth teller.”

                                                                                              Rosie Molinary: Welcome Home, You WIll Always Be Safe Here, Dec 2011

Don't t forget to tell some truths today! 
  

Just a little thought -

Third day, and I'm sharing a tip I've seen a few other places, but I've got a different reasoning, so I figure it's fair game.

When I mentioned on Tumblr that I was participating in NaNoWriMo, a couple of people contacted me to give encouragement, ask what I was planning to write, etc.  Given that most of what I post there is chronic illness/spoonie related, it will come as no surprise that many of these private messages came from other spoonies. During one of these conversations I mentioned that I was going to try to front-load as much writing as I could manage in the first week or so, because I will - without a doubt - 1) have low/no spoon days; 2) get sick at some point (to varying degrees of sickness, but hopefully nothing serious; 3) want to spend time doing something other than write - like eat on Thanksgiving, or spend some time with either of my November birthday-girl sisters; 4) have days when writing is just not happening or other things are much more interesting and words are stupid; or 5) days when you have other commitments and just don't see how to squeeze some writing in.

Now, I've seen this tip in relation to issues #3-5 - I won't be the only NaNo participant planning on some turkey and pumpkin pie this month, and a lot of other participants will have a ton of commitments that I do not - full-time/part-time jobs, families that they have to care for every day, travel schedules, kids hockey games they have to sit and watch and freeze at, whatever. And I'm sure we will all be faced with a day when, as happened to me last November, the sum total of our (usable) words will be the ones that are the main characters names - everything else will be a whole bunch of nonsense. (Countable nonsense, as far as word count goes, sure; but I always felt like it was almost cheating if I knew that it would never actually end up anywhere near the finished project.  But that's my inner editor at play, and she's supposed to be on vacation this month.)

But I haven't seen a lot of discussion surround issues 1 & 2, and I realize that for most NaNo participants, they won't come into play: A low energy day here or there for a non-chronically ill person, is not unheard of, certainly, but ... its a different kind of energy when you start talking about spoons.  On a day when I have no spoons, I don't mean that I might be too exhausted to write - I mean that I would (most likely) be too exhausted to eat. To take my meds. To roll from one side of the bed to another. To hold a pencil, or open up the laptop cover, let alone lift the thing that suddenly weighs more than 900lbs. To think through the brain fog enough to remember to brush my teeth after breakfast, instead of before. To try and remember if I took those pills already or if I just pictured taking them (which is why I have a whole pill system, but that's another post).

So writing anything legible or interesting, or valid (in my own opinion) on those days? Even if I keep to the daily schedule that everybody recommends, or force myself to sit in front of the computer during what is my usual writing time? It's simply not an option.  And that's ok: it's not a huge deal.  It is a knowable obstacle for me, because I have been doing this for a long time.

As for #2 and the likelihood that I will fall ill this month? Today is the 3rd of November - yesterday  I visited with three children under the age of 10, and a newborn, and some adults. Today I can't move. It is a very high pain day; and it is possible that it could turn up to flare levels, but I'm hoping it doesn't. Pain is (for the most part) something I can write through (depending) - but if those little lovely ragamuffins also brought me some nice germs, or if my visit to the hospital tomorrow where people are apparently incapable of not coughing on me results in my next bout of strep or the flu, or - god forbid - something more serious; well then, all writing bets are off. It'll be a constant game of who knows.

Which is basically how it's going to be anyways, for all of us: a giant game of "Am I going to write the words today?" "Am I going to make the daily/weekly/monthly goal?" "Can I shut my inner editor up long enough to reach 50,000 words?" - We're all in a limbo here, and that's part of the fun.

But if there's anything I learned in the years of trying to complete college and deal with chronic illness at the same time, it's to get as far ahead on the syllabus as you possibly can, while you can. So, if I can write an extra thousand words today, I'm going to. So that I'll have that little cushion there for tomorrow, if I need it. 

Because, even though the goal is to write everysingleday, and even though I am remembering that the more I write the more I want to write, November is not a month set apart from the rest of my life - it is not going to be some magical oasis of health and vitality and peace and calm and quiet, no matter how much I may wish it so.

So, that's my (completely unoriginal) piece of advice to all you other NaNo writers (and goddamn it, we are all writers!); Spoonies and non-spoonies alike, if you can - give yourself a little cushion, for the hard days, so you'll have something to fall back on.

Ahead, to day 4.

Alright all?

Had tons of company today, and very little remaining spoons, so a brief outline:

•  Our first time (impromptu though it may have been) babysitting BabyD, as his Mama wanted to head into the city for the World Series parade.  Only a couple of hours, with lots of check ins from the worried/missing her baby Mama, and he slept 9/10ths of the time, but... there was snuggling and sniffing. (Why do babies smell SO GOOD?  Actually, I just read an interesting piece on this, but I don't have the energy to look it up again tonight - remind me, if you're interested.)
• Then his mama came back, with her friend, who hung for a little bit;
• Then Former College Roommate/Best Friend and her three girls showed up for our pre-scheduled play date; her girls - while totally awesome - are exhausting.  I mean, they're super fabulous amazing ladies - an 8-yr-old gamer (we played Monopoly and Cribbage!) and dancing machine (she competes and excels); her 5-yr-old sister who is a fireball with just the quirkiest, kookiest kid, who will be a Karaoke champion when she's older, I have no doubt; and my youngest goddaughter, who just turned 1, and is all chubby cheeks and heart-melting, toddling wobbliness. But the spoons, they disappeared quickly. 
• And then SisterJ and her Hubby showed up (to steal some BabyD time, I'm sure) and things got a little tense, because SisterCh had had just about all the interference baby-wise she could handle and she kind of snapped at SisterJ over something that ordinarily wouldn't have bothered her.  So a little hiccup there, but SisterJ seemed not to take it too personally, which is good, because that kind of thing can escalate quickly around here (in case you hadn't noticed).

So I missed out on a little bit of sister time, what with all the children and games and hot chocolate with and without fluff, and now it's too hot, and now it's not hot enough;  and the "Auntie NTE! Auntie NTE!" calls from all direction, but I think they understood.

Good thing I got my word count out of the way E A R L Y this morning, in anticipation of the ladies visiting. Because I doubt that any fictional sentences would be awesome tonight.

Hi Guys!

Are you ready for me to write more here in the next month than I have in all the previous months of this year combined? I thought so! Welcome to yet another NaBloPoMo - National Blog Posting Month - where I will attempt to write everysingleday, and you will attempt to not get bored of me writing everysingleday.

Considering how much little writing I've done since last years NaNo/NaBlo, this should be a real surprise for both of us!

I've already gotten off to a good start with my NaNo word count - met today's quota, and am going to be attempting to pad it a little bit, because I know I will have zero spoon days between now and the 30th, and I will need all the padding I can get to make it to 50,000 words. This year's book is a little bit more plotted out than last years - which means that I thought about it for at least 5 minutes before starting this year, because last year I didn't think about it at all.

I've got a very vague outline of what I'm hoping will turn out to be a middle grade/YA mystery novel - the middle grade/YA decision being dependent upon whether or not I can write it in the tone I'm hoping to strike, or if I make a bunch of 12 year olds sound like adults, in which case when editing time comes, there'll be a ton of work to do. But I'm not going to worry about that for now!

Nope, at this point, it's all about getting the words down on paper, getting the story out into the world. And this year, I actually know a lot of NaNo participants (and/or people I know are participating in NaNo), and am hoping to go to one or two of the local meetups - look at me, all doing more things I'm uncomfortable with!

But the main focus for the month - to the detriment of preeety much everything else (aside from my health & the people I care about, basically) - is going to be getting a book out of my brain and into my computer screen.  Without editing it a million times (one of my mistakes last year was that I kept going back all the time), or being super judgemental about it (who, me?).

For all my fellow NaWhatever participants: Good luck, good luck, good luck!  Let's get to writing! Follow me on Twitter, or add me on your NaNo page, if you want to commiserate about word counts (I'm a good commiserator).  See you at 50,000! (I'm NeverThatEasy on both of those, btw.)  For those of you just following along, and thinking "what a bunch of kooks, to try to do this in November of all months" - Right?  What were we thinking??? Please keep your fingers crossed for us, and, if you follow me on Twitter and want to bug me about my word count (if I haven't mentioned it in a while, for example), please feel free!  3/4 of the reason I believe I can do this is because I really hate to let people down, so now that I've told everybody, I feel like I have to do it for real. 

Current word count, by the way, after an hour or so of writing this morning is 1684. Definitely time to pad that a little.

Thoughts on my ill-aversary

Today’s my ill-aversary. The last day I remember being well was October 19, 1994.  I was 15 years old, and spent the day with my friends, painting @ a hospice with a volunteer group, then running around Boston via the T with the kind of joy that only those who’ve just recently been allowed to go places unsupervised can muster for subway rides.
The next day I woke up unable to swallow and I felt like I was wearing a dozen coats made of lead.  I was exhausted in a way I’d never felt before, I had a super high fever, tears leaked out of my eyes when I tried to move, and (what turned out to be the first of so many unhelpful) emergency room visits told me that I would just have to wait out my “unidentifiable virus”. Except it just never went away. 
From there, to mono, to ‘infectious process undetermined’ to ‘autoimmune disease as yet undiagnosed’; through CFIDS and Fibro and POTS and asthma and walking pneumonia and shingles and ‘genetic issues’ and migraines and whatever the hell else is wrong with my immune system and disaster area of a body at this specific moment in time. Most days, I figure I have a pretty good handle on how to live the chronic life.
But today, when I remember the girl I was 19 years ago (and knowing full well that who you are when you are 15 is awfully different from who you are when you are 34, chronic illness or not) I’m sad for her.  The girl who thought she was going to be a dance teacher, and woke up one day unable to stand long enough to turn the music on for her class. Who tried to keep dancing but, eventually, between the passing out and the feeling like she was having a hard attack every time she moved, had to stop. The girl who was shy but worked so hard to make new friends, who saw a lot of those friends disappear when her symptoms kept her home, again, always.  The girl who just didn’t understand why she couldn’t MAKE HERSELF GET BETTER, no matter how hard she tried, no matter how closely she followed the doctors’ directions, no matter what witchdoctor-y potion she willingly swallowed.
I want to go back and give her a hug and tell her I believe her: which was the thing she needed to hear the most back then, when even the people that ‘believed’ her had their doubts. When even she had her doubts.
I want to tell her that - even though she won’t get better (and will, in a lot of physical ways, get worse) - that it’s still worth sticking around. That the chronic/spoonie life is definitely living life at the hardest level, and I’m sorry we have to do that, but we are going to do that. Even when it feels like we absolutely can. not. for. one. more. day.
There was internet when I was 15 - bare bones internet: DIAL UP internet , but there was no Tumblr (There weren’t dinosaurs either, though, you whippersnappers): at first, I was so alone with my illnesses that I might as well have been in Siberia compared to everyone around me. My friends didn’t get it, my family often felt I was exaggerating, my doctors kept saying to push myself harder, not understanding that - the type of kid I was - I would push myself so hard that I wound up in the hospital (a lot). I remember that girl, and how alone she was.
And then I found the corner of internet that I needed to find: There were listservs (which, again: dinosaurs), filled with other kids/teenagers who were just sick as I was. Who got it. Who didn’t have the words ‘complainer’ or ‘lazy’ superimposed over their mental pictures of me. Who helped me understand that I was more than just the sick girl.  The CFS-Y (and later CFS-20s) groups were my link to people like me: and once I knew they were out there, I had to keep finding them.
From the listservs to forums, to my own blog and the blogs of zillions of other spoonies, to Tumblr - I honestly don’t know what would have become of that girl if she didn’t have people who understood, somewhere out there in space, to talk to. And not just other spoonies, but just people who listened and got it, and let me talk, and heard me. Even now, when I’ve got a family who (mostly) gets it, and friends who try: to have this space out here to say what I need to say, and to see that there are other people who are dealing with the same crap as me? It’s invaluable.
IDK where this is going: I started out feeling really sorry for myself because, 19 years ago, I was a different girl… Who isn’t that true for? And I’m still sad for me/her - for that life I wanted that wasn’t to be.  I’m sad today for the things I want (work and family and adventures) that just aren’t possible for me right now, because of how sick I am. And that sucks, big time. And it sneaks up on you, even when you think you’ve got a handle on it.
But also? I want to say thanks; Because the only reason I’ve even partially got a handle on it is because other people get it. Because there’s people out there listening. And sharing their stuff too, to make me feel less like I’m stuck in Azkaban all on my own, Dementors roaming & waiting for me to try to escape.










(cross posted on my tumblr)

On being an auntie (again)

Dear DD ~

 Tomorrow you will be two weeks old. I hope these first two weeks of getting to know your mom and dad, your two big brothers, and as much of our crazy family as possible have been wonderful for you.  I'm sure you're pretty overwhelmed with this whole "being alive" thing: let me give you a clue - the rest of us are too: It never gets old.  Just enjoy the ride as much as you can.

You were the first baby I've ever seen being born, and ~ let me tell you ~ it is not something I'm ever going to forget.  I know you won't remember it, but for the rest of us there (and all of the aunties and uncles and cousins and brothers and grandmas and friends who weren't lucky enough to be in the room at that moment, but who were thinking of you and your mama with all of their might) it was a miracle, a treat, an honor.

If I were going to tell you your story, I could start waaaaay back at the beginning and tell you how hard your Mama and Daddy tried to make you into a reality: how they took all different sort of tests and medicines and shots and procedures to make sure that someday, there would be a little you.  But that's not the fun stuff, not really.  The fun stuff started two weeks after all of that when Mama found out you were coming.  Soon, you had all sorts of nicknames: Baby Cold, Little Nugget, Lil Man, but the one Mama & Dad used the most was Baby Dash.

We had to keep it a secret for a while, because being a baby is a dangerous proposition, but thankfully, you were up for the challenge, and soon everybody knew that there was a little guy - a little you! - in your mom's tummy. Well, almost everybody.  There was that little mix-up at your cousin's birthday party in May, when Auntie N's sister said "So I hear it's a boy!" in front of your brothers, who didn't know yet.  Poor Mom was so upset she hid in the bathroom for a while, only coming out after mean Auntie J refused to bring her food in for her. ;)

But you kept on growing big and strong in Mom's tummy, and soon there wouldn't be any hiding you; not that she wanted to.  Mama always looked lovely pregnant, even when her poor piggys got all swollen and she felt like she had "a face full of chins" - I think she was gorgeous the entire time, and she was lucky enough that (up until the last month or so) you didn't really cause too many problems.  But then there was heartburn and not sleeping and all sorts of discomfort, and by the time September rolled around, Mama seemed pretty ready for you to be born.  Of course, like a true NTE's Larger family baby, you had your own ideas about that, and kept everybody waiting until the very last week!

Even when your labor started, you took your sweet time in coming out, playing peek-a-boo with the midwives for the course of an entire day, till your poor mom was so sore and so tired and so... DONE that I'm surprised she didn't leave Daddy for the anesthesiologist when he came to give her her epidural.

Of course, that was almost 20 hours after her water broke, and 10 hours since she'd been in active labor, and 5 hours since she was at 9 centimeters only to go back to 8 when you decided you weren't quite sure that you wanted to make your entrance that day. 

Your mama is a warrior, kid: and don't you ever forget it.  I know she'll doubt it more than once in the next couple of months (years, eternities), but she wasn't the one watching the battle, she was too busy fighting it. As an observer, let me tell you that she fought FIERCE.  I wanted to sing her every song about heroes I'd ever heard:  to have Beyonce echoing "Who Run The World" down the empty corridors, "Eye of the Tiger" blasting out over and over again to help her stay pumped up.  Not that she needed it, but because she deserved it.  

In a surprising turn of events, your mama, who swears more on any given day then just about anybody I know (except for Auntie J, of course) ~ said only one word, over and over that day: Ow.  A multiverse of curse words at her disposal (and I thought up some really good ones later on, but that's skipping ahead), and all your Mama said was OW.  But it wasn't a nothing word, that ow.  It wasn't a throwaway or a waste - she meant it: Every. Single. OW. 

Each was a powerful OW, for sure.

 And behind them, I could hear how scared she was - for you, for her, for how long it was taking and how hard it was turning out to be, and the needles and the epidural (which she did not want at all, originally) - and, eventually, I could hear how exhausted she was, and how low her reserves were getting, but through it all, her OW was a freaking powerhouse of a word: A magic spell that she was weaving around the both of you, calling you, trying to get you to come out, to be here, to be safe at last. To be hers. 

I get chills just thinking of it.  How all day she moaned and whispered and prayed for you to just come out and be hers. 

Of course, there was also no small amount of whining that you weren't out already or ordering people around (Daddy especially got in trouble for things like moving his hands, going to the bathroom, or attempting to stretch), but who could blame her? She was doing all the heavy lifting, and the rest of us were just the back up.

And the back up team worked some magic in that room as well, I'll have you know: Grammy soothed with her tales of experience, her "no press here"s and  her trademarked 'brushing the hair of your forehead' move, which your mom usually doesn't allow, but couldn't get enough of that day;
Auntie J became some sort of squatting sumo-dancer, holding Mama's weight while they swayed together, trying to outlast the latest contractions, and told funny stories about how Papa used to bring them presents from the gift shop (which was really the lost and found) at work;
Daddy was a back-rubber extraordinaire, climbing into the bed behind Mama at one point and finding the exact right position (from which he could not deviate, not even for a second) to help the back labor pains feel just a little less devestating;
I did important things like guilt-eating donuts, trying to help Mama understand that taking the epidural was not a sign of failure, but a sign of progress that would help get you here safe and sound, and counting to ten really loudly and slowly.  (Also, like a dope, picking up Mama's leg at one point because she couldn't do it herself and the intern who was doing it left the room.  And that is why Auntie NTE's arm is still not working correctly today.  But it was worth it. :) )
Even Uncle Kand Papa managed to stop by after work (and, handily, after the epidural) to pass out cigars and tell you to hurry on up, respectively. And all across the Clan, phones beeped and Facebook lit up with all sorts of "C'mon kid!" and "You can do it Ch & DD!" messages.  We even had some 'haunting' visits, as the bathroom light kept shutting itself off, and we all decided that Nana, a constant "When you leave the room, shut of the light!" fanatic, wanted to let us know she was rooting for you guys too. 

We loved you already, you lucky devil, you.

But your Mama worked hardest of all, and longest of all, and eventually, after a day and some hours worth of labor, you were finally ready to make your final approach.  Hours of "Ow" and magic spells came down to a few more hours of pushing and counting and breathing and more magic spells and holding our breath and a couple more rounds of peek-a-boo with the midwife.

But eventually, there was your tiny head!- not feeling so tiny to your Mom at the moment - and all that hair! (You're our first really hairy baby, you know... most of your cousins were capital B Bald, but you're covered all over with dark downy hair.) You sort of had that cone-head thing going for you, at first, but then there was your squishy little face, your shoulders, and all the rest, and there you were!

Baby DD, all born and pink, and adorable. 3:34 am, Sept 27th.

By the time the midwife passed you to your nurse, your cone head had somehow rearranged itself into a perfectly small, round noggin, and you started crying before they even started rubbing you down. 

All fingers and toes, and fuzzy arms and legs, and heart shaped ears, and long-tree-frog toes, and button nose accounted for!
Your dad picked you up and you met your mom for the first time, and there were tears and smiles and congratulations all around!  (Grammy and I may have sniffled a little in the background, but you'll never be able to prove it. )

-------
And this is the part I will never tell you, DD ~ about how badly your Mama scared us after you were born.  How there was so much blood, that I knew, even though I'd never been in a delivery room before, that something bad was happening.  How it just kept coming, and with it came a swarm of new doctors and nurses and medicines, and machines, and how they all had that air of 'not panic' I know so well from hospitals and hospice workers.  'Not panic' must be a thing they practice, with the intended goal being that they keep their cool in emergency situations, but it has the adverse effect on any layman who's ever dealt with it before.  When they started buzzing, my heart  - so close to the surface now, thanks to your safe arrival - literally froze.  I watched the monitors as Mama's blood pressure zoomed down to meet one of mine, and searched the stone faces of the newly arrived doctors as the blood just kept pouring out.

And that's the only way I can describe it: literally pouring out. And when the meds they gave her didn't work, within five minutes, she was bundled up and was on her way down to the operating room, accompanied by the flurry of doctors and nurses and midwives, while Daddy, Grammy, your nurse and I were left in a now silent room.  It's the eeriest worst non-sound ever, honey bunch, and I am praying to a God I don't believe in that you will never have to hear it in your lifetime, even though I know it's a wasted prayer.  I was holding you as they took your mom away, and she was looking for you and I said "He's right here; he's fine. He's ok." Holding back tears, because now her face, instead of the warrior face I'd been seeing all day, was the scared face of my baby sister who used to curl up in my lap when strangers came into the room - and I told her "You're going to be just fine." in my most "I'm the boss here, I know what I'm talking about" voice as they rolled her out of the room. 

The times I use that voice the most? Are the times I feel it the least.

And then the nurse said this wasn't uncommon, and she was sure everything would be fine and that she had to take you to the nursery, and I passed you on to Daddy and took a couple of pictures and tried to stay calm and not think about how the pictures I had could be the only pictures I ever got of you with your Mom.  And I tried to use my fake "I know what I'm talking about" voice with Grammy, who never really buys it, but at least it stopped her from bursting into tears at that second, which is what we both felt like doing.  And then she went for a cigarette (which is her "I know what I'm doing" coping mechanism) and Daddy and the nurse took you to the nursery and I was left alone to pace a room with my baby sister's blood on the floor. (And her/your placenta sitting on a tray table looking gross ~ which, let me tell you, if things had gone differently, your mom wanted to EAT that.  Well, take it in pills, anyways.  And I literally thought about how it looked like liver and how I might possibly throw up on that same exact floor.)

And then I called Auntie J and tried to tell her that you were here! and the scary stuff about your mom! without freaking out too much! Which I guess I didn't pull off, because she later told Grammy I sounded like I was freaking out.  But whatever. And then I eavesdropped on the nurses at the nurses station, listening for any news from the OR and Grammy came back, and the intern came back to tell us that your mom had stopped bleeding almost as soon as she'd gotten into the OR and all was well, no tears or anything, just contractions that forgot to stop after you were born, pushing out the only thing that was left in there, Mama's blood.  And although she needed a transfusion later that day, she is fit as a fiddle now, and that's the happiest ending in happy ending land, for sure.
-----

But I won't tell you that part.  I'll stop the story a few hours later, when your mom and dad are both sleeping in their beds and you are sleeping in your little rolling see-through bassinet and I'm watching the sun come up over Cambridge & Somerville, an area where our people (at least your Mama's people), have lived on/off for at least 100 years, thinking about how now we have a new people.

 I'll finish it with me seeing my baby sister and her husband, and her brand new baby, all dreaming the dreams of the innocent, or the warriors, or the rewarded.

 Whatever you guys were dreaming about that day, it couldn't have been anything better than what was actually happening, what was brand new, and vividly real & miraculous in that hospital room that September morning.  A new family, starting their first day together.

Welcome to the world, Baby D.  Thanks for getting here safely, for helping your Mama realize she's a warrior, and for looking at me with those big dark eyes.  I'd say "I couldn't love you any more than I do right now", but all of your cousins have dis-proven that theory already, as I love them more and more every day, year, eternity.  So you better get used to your Auntie NTE, pal, because I'm sticking around.  Now, convince Mama & Daddy that 40 minutes is too far away, ok?


 

Where I went, and why I went

First the where - Literally? Nowhere.  Still here. Still in bed, most days, on the computer, wandering through the internets trying to make connections, or feel connected, or stay connected.  Mostly, I've been Twittering and Tumbling, and you can find me there even when this space is silent. Usually: typical 'in case of flares, all bets are off' rules apply there as well, however.

As to the why it's been so quiet here, in this first space I carved out for myself on the internet oh so many years ago (coming up on the 8th anniversary in a few weeks!) now, well, as always, that's more complicated.  Part of it is that I've been feeling overwhelmed, which is when the creative part of my brain just shuts right the hell down. And writing words becomes more like trying to pick through the trash and put together an edible meal: there may be something in the heap that's not gross, but a) it's tainted by it's location and b) who has the energy to wade through all the garbage first? Obviously not me. 

Other contributing factors include trying to squeeze in as much of summer with the kiddos as I could; getting dumped by my primary care doctor for being "too complicated" and then having to put in all the effort of finding a new doctor and having to explain all the complicated crap (by which I mean my body, my life and my lack of health) to him; being supportive of other people and trying to eek out a little support of my own; feeling really horrible about my own emotions and jealousies and trying to convince myself that I am not a complete shrew for feeling left behind or lost; and ignoring the fact that anniversary of my grandmother's death was quickly approaching (and by ignoring , I obviously mean obsessing over ). So, you know, feel good, happy times!

In all honesty, there were some feel good happy times - SisterCh's baby shower went really well; we taught LilGirl how to play poker; my mom signed up to take a nursing course, which is like hallelujah! awesome, as it is a first step away from some life-freezing depression for her; and, in a surprise development, my Soon-to-be-Sister-in-law (of 13 years) is no longer 'soon to be': She and my brother eloped over the weekend! It was just the two of them and the two kids, plus my cousin who is licensed to perform weddings. It was, most definitely, a surprise for all of us.  But I'm happy for them, and can see the lure of skipping out on all the stress and brouhaha that can lead up to a big fancy wedding.  (Although, would it have killed them to just be like "hey guess what? jump in the car and meet us?" Ack, well: to each their own.)

So it hasn't been a complete bust of a month, just that all of those things were few and far between, and the rest of the days were filled with meds that made me feel worse and a brain that couldn't stop counting down, and just a general feeling of ick.

But the day I was dreading came, and went, and it wasn't as awful as it could have been - given my brother's happy news, and the fact that they came over to share it.  But not before I, like a dope, thinking to let myself wallow in the sadness of the day decided to read The Fault in Our Stars by John Green, a book I'd been studiously avoiding for the past year because everybody kept telling me how sad it was.  AND THEY WERE RIGHT.

Reading a super-sad book on a super-sad day? Was not consolidating my sadness, but compounding it. 

Note to self: don't do that again.  Ever. 

Note to self part two: Please also try not to go complete radio silence in your own damn blog for nigh on a month, either, okay?  I mean, I just assume that there are people still reading (I know analytics don't really matter because you have to go to the page for that, and  - if you are anything like me - you are just reading this in your reader (probably Feedly), and clicking J as soon as you're done. I mean do people still go to individual blogs and check them? I don't know how you'd do that.  But hi there, feed-readers!  Thanks for not unsubscribing! Click through and comment any time your little heart desires!) and I like to think I'm keeping up my end of the bargain. 



 Now I should probably find out what you give your blog on its 8th anniversary, and think about what comes next. 

Miracle of miracles.

July rolls out; August rolls in, NTE finally manages a new post.

We're gearing up for SisterCh's baby shower on Sunday - it's Baby Mickey themed, and although I haven't done a ton of the planning/crafting, I've dabbled a little and made some cute things. I'm excited, except for how I also hate showers, which seems to be the general consensus about showers: that they're boring and annoying, but we do it anyways, because we love people.  I, personally, hate the idea of having to open presents in front of a bunch of other people (although my brother did make a good point about, how, at Christmas time this is exactly what I want us to do, each person opening gifts slowly and one at a time, which NEVER HAPPENS, but that's different, because it's just us), and I find it awkward to be watching somebody else opening presents, so that's just a weird type of party to be having, I suppose.  Showers are awesome because you get stuff you really need (not that I would know: Being single and childless, you really get screwed on this whole gift-giving side of the deal, especially, since I'm living at home, I've never even got so much as a housewarming present), but pretty much every lady I know has showers on their eye-roll, 'is it mandatory' list.  Hopefully, Sunday will still be fun, regardless of said awkwardness, because SisterJ has put a lot into planning it, and has done some tremendous work.  I'll try to remember to post some pictures next week: when you see SisterCh's belly, you're just going to want to rub it, she's totally adorable.

What else? I've met with a new primary care doc, and he seems - ok.  No giant red flags; pretty good listener, did give me a speech about weight, but it didn't seem to be his primary concern (which is good, because it sure as hell ain't mine). I'm thinking of starting the search for a therapist, as my feelings seem to be at a constant simmer lately - as if just one little bump up on the heat and I'll boil over.  Not necessarily in anger (although there's that, mostly in relation to my dad), but also sadness, or jealousy, or boredom, or just feeling completely bereft. There's not a whole lot of happiness boiling over, unfortunately. 

    ALTHOUGH - and this is a big one - I am 95% finished with a project that has taken me nearly 3 years to complete: the organization of my aunt's photographs.  When I started, I never realized it would be this difficult, but there were so many stages -

•  Because she was a smoker, I had to air out all the books for months before I could even touch them; 
• Then I had to find a way to get the books that were in albums (all those sticky paged albums, complete with yellow edges and disgusting brown corners) out of the albums without ruining them, 
• Then I had to flatten them enough to be scanned (so, more months of waiting),
•  Then I had to scan them all; 
• After that came the arduous task of identifying the particulars of each photograph and labeling them all - both physically and on the computer file - which was not easy, because a) nearly 3/4 of them were not identified previously, so I had to do a lot of asking, and comparing her photos with our photos  - I am a total Veronica Mars/Nancy Drew/Girl Sleuth, btw: I know who had what haircut in which year, who moved to which house when; what year the back porch was screened in, which dog lived in which backyard, and who drove the green car in which years before they passed it down to the next person - to get to all the answers, and 
• Then I had to put them all in some sort of reasonable order  -3/4 chronological, with exceptions made for trips (which nobody remembers what year they took them in plus, they took pictures of every animal in the zoo and that is stupid boring) and things like car shows (again, that nobody really cares about in the timeline of their lives).  
• Now I am finally putting them into actual albums (non-sticky, thank the lord).
• After that all I gotta do is put all the computer files together and dropbox them to her kids/my sibs, whoever wants them.

    Plus, in the course of those three years, I was
 - living at Grandmother's house for the summer - once for my own good, and then for hers (but neither time with access to the photos);
- helping raise some childrens; -
 having major sinus surgery & then recuperating;
- dealing with at least 22 major flares;
- grieving;
- dealing with all my family's bs;
- and a whole lot of other things I can barely remember. 

So, it's not like it was three constant years of work, but it was in my brain as a "to do" for three years (and definitely in my aunt's brain: she did not let me forget that I had her pictures, not even a little bit), and so finishing it will be a huge relief and I cannot overestimate how happy it will make me. Just putting all the pictures in the books right now (final stages! hooray!) is making me want to do a happy dance, even if it is tedious to stuff albums for four hours.  But to be able to clear something off my plate at this point and go: That was freaking hard, and I did an awesome job?  Ah-maz-ing.  Probably nobody is going to appreciate just how much work I put in (nobody even noticed when I did ours, or Nana's, really): I mean I counted candles on birthday cakes and pulled out the family bible for names long forgotten, and dug out my grandmother's pictures so that my aunt could have more pictures from her own childhood in her albums, but all my aunt will see is that one picture she knew she took on a trip to Lake George in the late 1980s that I haven't been able to find.  But I'm going to be ok with that, because I know I rocked it, and I'm going to give myself some major kudos.  Maybe even buy myself a present. Suggestions welcome!

Anyways, that's the latest from near the beach in Massachusetts (not that I've set one toe on sand this whole year, but it's still the truth).  How's all you fine folks out there in blogland?