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Today's topic is celebrating.
Well, I'm taking adding my own little twist here, because what I'll be celebrating this weekend is National CFIDS Awareness Day. (Technically, it was May 12th, yesterday, but today's the day I get the most traffic here, and I'd love to use it as best I can.)
CFIDS = Chronic Fatigue & Immune Dysfunction Syndrome.
People who suffer from CFIDS also have higher rates of
Fibromyalgia. Since there is a high rate of co-morbidity, May 12th (smack dab in the middle of National Arthritis Awareness Month) also happens to be Fibromyalgia Awareness Day.
Fibromyalgia & CFIDS are life altering, debilitating illnesses.
For which, there are no known causes or cures.
Treatments are varied and limited to management of disease symptoms, not the underlying issues.
funding is minimal,
and the patients who suffer from these diseases are often misdiagnosed.
Public support for these illnesses - both because there is little known about them (at one time, CFIDS was dubbed "the Yuppie Flu;") and because of their belittling names (go here for a discussion on how much of a misnomer "fatigue" really is) has varied - although, as research continues to show a biological basis for the illnesses, the medical community, the media and the public seem to FINALLY be catching on to the horror of living with these diseases.
At the end of this post, I'm going to be full of link-y goodness for you to check out, so that, if you so wish, you can learn a lot more about CFIDS/ME. I hope you check some of them out.
But, since we're looking for pictures, here are some of the best CFIDS &/or FM related pictures I've found on the web:
These t-shirts are produced by various individuals and illness related groups,
& are all available for purchase from cafe press.
I hope they can give you some idea of what these diseases are like
And why it's so important
that we fund
A big thank you to all of those who've supported me during my battle with these dreadful illness: 12 years into this mess, and I wouldn't have made it a day without all of you. (Including my new blogging friends, who've been more supportive than I could've expected!)
And a special Mother's Day thanks to my mom. For more than I could ever say. (Now, if only she knew I had a blog...)
Here's the link-y goodness I promised you:
Learning to Live With CFS: We Are Here, We Are Here! *
Laura Hillenbrand, author of Seabiscut, discusses her initial fall into illness
Autumn, a fabulous blogger, does her usual fabulous job of connecting the dots over on perfection on a curve. How many degrees away are you?
A good a reason as any for cake, right?
Support groups I've found helpful include But You Don't
Look Sick & SleepyDust.org
For More Information Check Out:
The CFIDS Association
The International CFS Association
The Fibromyalgia Network
& The National Fibromyalgia Association.