3 months later.

I miss you guys.

That seems like the place to start.

This is definitely the longest hiatus I have taken from writing here at my blog since I started it (coming up on 10 years ago), and it was unplanned, but pretty unavoidable.

Since my sister-in-law passed 3 months ago, I've been completely absorbed in trying to make things bearable for my brother and his kids, which basically consists of me living on their couch, making sure they don't starve (or, more likely, perish from scurvy, as their interpretation of fruits and vegetables runs more to the 'by the foot' and/or  'fry/chip' variety), pretending my 2nd major in social work 10+ years ago is an acceptable form of grief counseling, and making sure they don't live in filth. (My brother was ever the slob, and devastating grief did not make him MORE likely to pick up after himself.)

I'm not doing it on my own (there are a lot of us on the support staff) but a lot of times - when my niece is shivering her way through an anxiety attack at midnight, or my nephew is having a mini-breakdown that we're both pretending is all about school, or my brother is upstairs wailing his grief away and I can't go up and comfort him or even leave and give him privacy - it can feel like I am.

Normally, periods of emotional upheaval leave me itching to write, and this last little while was both no exception, and so much of an exception you wouldn't believe. There were times I felt as if if I didn't write, I might explode, and there were times were I felt like any words I could possibly write were too small, too insignificant, too useless. Mostly, though, I've just been too exhausted to parse any words at all.

The amount of spoons that this all takes - physically and mentally - is overwhelming. It's a 24-hours a day position, with no breaks or breathers, most times. My niece needs constant reassurance that everyone she loves is not going to just disappear, sometimes to the point of needing to be near me for hours at a stretch, constantly touching and talking and... that is not a thing I am physically capable of doing, most days, but I do it anyways.  My brother needs someone to run herd on his kids during the days he can't get out of bed, even if they're huge balls of tantruming energy, which is not in my wheelhouse, but I do it anyways. My nephew wants me to help him figure out calculus I forgot three seconds after I learned it 20 years ago, through brain fog so thick I put the controller in the refrigerator the other day. Not a great plan, but I do it anyways.

"I do it anyways" seems to be the motto right now, because shit needs doing and I'm the only one around to do it.

But this mentality (and let's face it, that's always my mentality, no matter how many times I try to change it), as you might guess, does not play well with chronic illness. I've been running on the fumes of fumes for at least two of the four months I've been here, and I keep crashing, but still have to push during the crash, because otherwise - as I previously mentioned - shit doesn't get done. And none of that stuff is optional: it's homework and 'my head hurts' and 'why isn't there any food in the house?' and three solid weeks of blizzard conditions and snow days galore. Decisions, big and small; appointments to make and cancel and try to show up at; rules to reinforce and reinforce and reinforce  - because bickering doesn't stop for migraines, and neither do dishes or meals or any of the other things that normally I would stop because it's just me and who cares, but right now it's not just me, and it doesn't stop, and that's hard.

It's all very hard, is mostly what I'm saying, and for every day I can crawl my way through without winding up in the hospital, I am super grateful.

And everybody else is on me to take care of myself better: which is a thing I want to do, a thing I know I need to do, but a thing I can't quite figure out how to do. Because asking for help is only OK if other people can provide it, and somehow everybody else is already doing the best they can here too. And I've definitely used up as much of my own reserves (ha! as if I had reserves. I had... like.... I don't know: gall? Is that a thing? I think that's the thing I mean.) as I could. I've been sicker here than I have been in years - part of it is exactly as I remember from watching these same kids as infants and toddlers, that every germ in creation is somehow called to them and then transferred to me, but another part of it is just being freaking exhausted in a way I've somehow managed to forget during (relatively) good cycles of illness.

I mean, I'm never NOT tired or sore - 20 years this past fall since that was even an option! - but I HAVE been taking care of myself and managing my illnesses for quite a while, and I've worked out all sorts of cheats to make things easier on myself, and so, I haven't had to be CONSTANTLY DOING anything for years (because I know how it wears me out, and is bad for me, and I don't do that anymore), so now, I guess I'm just remembering why. Oh yes: THIS IS THE REASON FOR ALL YOUR ADAPTATIONS, YOU FOOL. This constant exhausted feeling right here, where your brain is Swiss cheese and your white blood cells have declared themselves pacifists and your red blood cells have noped the fuck out of here, and you basically have all the energy of the lump of pillows you're trying to nest in, but you still need to get up and feed the faces of people who are still too young to manage it on their own. (Not that I don't make them do some of their own meals, but an 8-yr-old should not be in charge of feeding herself 3 meals a day, just take my word for it.)

If I've ever doubted that being a spoonie means being a warrior (and I only ever have in my own case, when it seems like the things I do are so little/adaptable in comparison to others), then those doubts are gone now. I could not be fighting any harder just to survive, and to pull these children and my brother along with me, than I am right now.

And, so, the lack of writing.

But I do feel like I'm going to explode without it, so I'm back. Even if I can't promise regularity. Even if the only thing I can promise is that when I show up, I'll have things to say.

I appreciate any of you still out there listening.

When creepy shit starts happening, the people who die are the ones who pretend it is not happening and who try to explain the creepy shit away and also the ones who try to convince others that they are crazy for believing in the creepy shit. The people who survive are usually the first ones to say “Hey, creepy shit, I’m not sure I entirely believe in you, but for right now I am going to take you seriously and act like you are real”*

My dad was married to SisterS' mom 37+ years ago, when she was a baby. They were only together five or six years, and he told me once that he knew it was over when, after his mother died, he was in a room crying and she just walked away, went to bed, and went to sleep.

"How could anybody be that heartless," he wondered to me as he was telling the story "if you love somebody, to just see them suffering and walk away, go to sleep?"  At the time, I agreed with him - although my step-sister's mom isn't a heartless witch or anything, it made me think about how against a person you'd have to be, how... cold to see somebody in pain and just... walk away.

That was before he taught me that walking away is sometimes the only thing you can do, the safest thing you can do, the only way to protect yourself.

He wouldn't see it that way - he very clearly thinks I am some version of the heartless witch I imagined his ex as all those years ago - but time and experience has taught me differently.  And still: I cannot be the completely heartless wench I want to be/probably should be in his case.  Too many times when I have been burned, I still feel sorry for him, to see him fall into the hole he has created for himself!  No matter that I have just been abused by this person, or if he has just finished berating me for a thing that leaves me with nettles sticking out of my heart, there is a part of me that is afraid of being the one who goes to sleep while someone else is sitting there suffering, and what being that person - in relation to someone who may even deserve it at that particular point in time - means about Me. As a person.  If you can turn your back on one person you love, can't you - given the right circumstances - turn your back on any of them? These aren't questions I have answers to... even if I know I'm not the one turning my back, that all the spaces I've put between us are there as protection, as barriers - mostly for my benefit, I admit - so that my heart doesn't keep getting crushed.    

I know he is hurting; I know he is using that hurt to hurt other people.  I can't bring myself to step in at the 'he is hurting' part, because I'm afraid it will turn into the 'hurting me/other people I love' part. It's learned behavior, I keep telling myself.  It's earned behavior.  It's not callous punishment or disregard for his feelings, even when I feel the most pissed off at him and think he might deserve one or both of those things - there is always some piece of me that remembers that once, he was a younger man, sitting at a table, grieving the loss of his mother, and his wife turned away.  That once he was a little boy whose father disappeared, and reappeared only to create havoc and bring misery. That, in his lifetime, it was reasonable to rage at people and expect it to translate into respect.

That, a long time ago now, when I was the one sitting grieving, and I realized my Daddy was gone, and that he was never going to be the man I needed him to me, I turned to my Dad (who was also not the man I needed him to be) and was told "he can't do any better, and you're just going to have to forgive him for it, because he doesn't get the chance to change it."

And knew in my heart that it was true for both of the men I have called my father.

I know it now, but it doesn't make living with him any easier. I don't know how to forgive ongoing hurts - I didn't then, and I don't now. Our current 'peace-ish' accord - which generally consists of us not talking all that much, and me sitting tensely while my parents 'discuss' things, keeping patrol for raised voices and insults, threats and unacceptable behavior - has been broken.  As always, I feel irrevocably, unforgivably broken.

It isn't as if he doesn't know I am doing those things, but it doesn't seem to stop him from raging when he feels it is his right. And, this past weekend, he felt he'd earned the right, yet again.

So I get to (yet again) have the fabulous experience of stepping between my parents to prevent things from getting physical. Of having to explain the situation to (grossly ignorant and so patronizing I wanted to punch them) police officers. Of getting all of my most sensitive buttons pushed - I am not his daughter; I will never have a meaningful relationship because I am a hardhearted, unforgiving bitch; I do not have the right to intrude into their 'discussion' because I am a child, and it is not my business; My mother is a cunt, and I'm just like her; I'm sick and weak and unlovable, and he should know because hasn't he been forced to put a roof over my lazy ass for my entire life, and gotten nothing in return? Of being kicked out of said house because I'm ungrateful and disrespectful and a bitch. (Not that I went anywhere, because... well, I don't really have any other options, but it's the thought that counts.) Of holding it together pretty well in the face of all of that, and then breaking down completely when he started to throw my siblings under the bus as well, because trampling me was not providing him with his desired response.

Of being ignored for every day since, for having the gall to call the cops, to say "That is e-fucking-nough." and "You have no right to treat people this way." And of knowing, eventually, that he'll come in here, with his half-assed apologies, and that I will be expected to forgive and forget. Two things that I have been unable to do - when it comes to him - for at least a decade. 

And so, I guess, it'll have to be my right to keep the walls up, to man the barricades.

To be the one who turns away, even if it makes me feel badly about myself.

Because it feels slightly less bad than the other option, which is allow myself to be attacked without standing up for myself, ever. To allow the people I love to be trampled without standing up for them, because he sees it as interfering and disrespectful.

To protect me is to be against him, at this point, and that's what he just can't seem to understand.

I wish I didn't understand it so goddamn well.

---- Captain Awkward's amazing analogy re: abuse and scary movies. Because I'm not going to be a casualty of this horror movie, if I can at all help it ---