Friday, March 03, 2006

I've got flare (yes, I know it's spelled wrong)

And that's because it's not the good kind of flair. I think we all know I'm running pretty low on that kind of flair... well, maybe you don't since you can't see me, but anyone in my actual life would laugh hysterically at the mere suggestion that I have style of anykind. Fashion is so not my forte.

But Flare? Sadly, I've got flare to spare.

I'm talking Fibro Flare, my friends. As in flare-up of symptoms.

I know I haven't really gone into depth here about my illnesses, (partly because I don't want this to be just a "sick blog" and partly because I haven't figured out exactly what to say), but since I've been out of commission for about a week due to a major flare, and have probably lost any readers who were coming here with any regularity anyways, I figured what the hell.

So - What the heck am I talking about?

Fibromyalgia is a chronic pain condition that has a wide variety of symptoms, and, sadly, no cure or regularlized treatment plan. Basically what this means is that there are about a million and a half ideas about what causes it or how it could be treated, but, right now, no proven cause or effect or cure.

And I've got it. (And a couple of other particularly nasty things. But let's focus on Fibro for today, shall we?)

When you're dealing with a chronic illness, you have a baseline - a level of "normal" that you exist at in whatever way you can. Over the course of my illness (12 years this October ... crap), I've had a lot of different baselines. I've been completely bedridden, able to go to school full days, able to go to school half days, hospitalized, able to attend college full-time, able to attend part-time, etc.

For the past year or so, my overall baseline had been improving: I've been moving up from almost complete bedrest to a semi-mobile lifestyle. I have to use a wheelchair to get around, can't stay up right for too long (about 2 hours is my max), but I was able to participate in some of the more minor triumphs of everyday life: getting dressed, eating at the table instead of from bed, baking a pie at Thanksgiving.

It hasn't been exactly fabulous, but it was a bit better than I had been. I've been coping - And then last week.... Total crash.


I mean I couldn't move. I couldn't think. I couldn't... anything.

Pain was my whole existence for about 5 days.

And I haven't exaggerated that in anyway. I mean exactly that: for 5 days, nothing existed besides pain. Every lymph node in my body was swollen, every muscle ached as if I'd stretched them to their breaking points. My face was just a ball of fire - cheeks flushed such a bright red that my mother could see in the dark.


And I have no idea what set it off this time: as usual, I hadn't done anything out of the ordinary. But I've managed to pick up yet another infection somehow (I think from the Doc's office, since that's the only place I ever go), and it ran me over.

The only plus has been how quickly I've improved: I've had severe flares last for months, and this one is already improving. (as evidenced by the fact that I had enough focus and energy to turn on the computer and hammer this out today - even if it did take me more than 5 hours to finish it).

I've heard that the blogosphere is a fickle place - that you can lose your readers if you don't post often and regularly. I suppose that could be true, and I'd rather not find out, but I can honestly say the word blog didn't even occur to me until yesterday - a good week after my last post. Oh well. I'll just keep hoping that people will wind up here and be interested enough to stick it out with me.

I'm feeling a bit better, as I said, so I doubt it'll be too long before the next post, but if you've got some time, you might want to check out these sites about fibromyalgia.

FM Aware
Arthritis Foundation

2 comments:

Awesome Mom said...

I hope that you get to feeling better soon! I would not worry too much about readership. People like me can subscribe to your blog and when ever you update we will know right away. That way we don't keep visiting an non updated blog. Write when you can and don't worry about the rest.

Hailey Harris said...

Here's helpful information for all fibromyalgia sufferers.

Fibromyalgia is a condition where you feel chronic pain in certain parts of your body; it is a muscular pain especially around the joints. There can also be centralized pain felt in the spinal chord, brain, neck shoulders etc. People with fibromyalgia generally complain of pain in the joints, but it actually is the muscles and the tendons around it that cause the pain, it can be excruciating sometimes and can be a continuous throbbing pain. People suffering from Fibromyalgia also show symptoms of depression, sleeplessness, irritable bowel syndrome, stress and many others, which are caused due to the pain.

Rid Fibromyalgia provides a simple process to helps you eliminate all your symptoms of fibromyalgia and enjoy living your life again. This will provides us the best and most effective solutions on how to rid ourselves from pain.

The Rid Fibromyalgia provides an eBook entitled “Heal the Body” that will teach you the best diet that will allow you to eat your way to wellness, it will also document which vitamins and supplements will target and reverse the illness, how to achieve pain relief through acupuncture, what exercises are safe and will work, and what type of medications may make you sicker, and what will work. This eBook takes a step by step approach in showing you how to rid yourself of the pain naturally so that you can take back your life.

We must know the symptoms of this illness. For us to know what would be the approach we will going to apply. Here's Signs and Symptoms of Fibromyalgia and steps to treat it naturally.

We must also be responsible and aware to the things to gain and cope up with this kind of illness. Eating nutritious food with regular exercise would be result to a better life. Here's Basic Tips in Coping Fibromyalgia.

If we say Fibromyalgia Diet, there is no specific recommended diet for fibromyalgia. But a healthy diet rich in vitamins and minerals can certainly help in coping with the illness. Magnesium rich vegetables are recommended for patient's suffering from fibromyalgia. Here's some information for you to help in Fibromyalgia Diet.

We must also think that vitamins are important for Fibromyalgia sufferers. This will give us additional energy and strength to kept a healthy living. But of course, you must be aware that not all vitamins are effective or directly gives you a good result. Find the best vitamins that would easily give a good response if your taking it. The best thing is your healed and keep your body healthy as possible. Here's The Benefit of Vitamins for us to know why vitamins are important for fibromyalgia sufferers.

Also feel free to view this video Fibromyalgia Help. It really gives good information for those who have Fibromyalgia and encourage not to give up because in every pain your getting through has a good solution in the end.

Here's Rid Fibromyalgia, For free info and helpful articles on fighting fibromyalgia.