My Grandmother's birthday is this month. This week now. Sometimes, when someone dies, the anniversary of their birth or death just sneaks up on you, or (if you're lucky) right by you. As someone who's lost (I was going to say a 'fair' number, but 'fair' doesn't enter into the conversation when you're talking about death, so I'll stick with) more than one person I loved, I've lived through loss long enough to know that it (mostly) does fade enough so that some years a birthday or death day will come and all I'll feel is that tug of longing, that twinge of regret that I no longer have that person in my daily life.
But firsts? Firsts of anything are ripe old bitches - and I know that I have been not been doing particularly well with my grieving process in the first place, this time around.
Mostly I feel like everybody else moved on, and I'm still stuck in last summer, holding the hands of a woman whose face I'm trying to carve into my memory as I watch my face fade from hers.
I can't explain how powerfully & profoundly that experience has changed me, and yet - nothing else has changed! She's still not here, and I still am: stuck in my bed, in this house, in this life that I don't want or recognize, but lacking the ideas, strength (physically & mentally), and just plain energy to do anything about it.
And now her birthday is coming up, and I'm hyper-aware of it. As in, I usually have no idea what the actual date is, unless I have a doctor's appointment in the near future, but ever since July 1, the calendar has been mocking me. It's been a constant, in my face, reminder that JULY IS HER BIRTHDAY and HER BIRTHDAY IS COMING, PREPARE TO CRY. The date has been getting closer and closer, and my mood has been getting darker and darker.
I think about how, for most people, Friday will have no meaning at all... even in our family, Grandmother's actual birth date was always one of those "Is it the 17th form 1919 or the 19th from 1917 or maybe it's the 21st?" kind of deals. (My family is bad at dates. Also time. Also lots of other things that matter to me a lot, which you can see would be kind of frustrating.) And for me, Friday is a huge, looming, taunting thing that I'm trying desperately to avoid, knowing it's going to come and suffocate me anyways.
Because, as I said, I'm no amateur at this whole grieving thing (even if it feels like I am, every. single. time.), I've done my best to keep occupied, knowing that distraction is one of my best coping skills. I've tried making plans for the actual date - my best friend is in New York, all my siblings are working, Mom says she is up for anything, but lately it's all she can do to not melt into a puddle every time she ventures out into the hot - and I think I've wrangled myself into a kiddo sleepover, finally, but - like everything else this summer - it's complicated too. No Longer Youngest Nephew (soon to be by the power of two, come to think of it) is 13 now, and .... while he's up for games and stuff, it's as if when his voice cracked, his preferences for spending time with me did also. It's not that he doesn't love me, or that we can't still have a good time together every now and then, but he'd rather be with aunts who drive cars to New Hampshire where he can hang out with his older cousins, or aunts and uncles who let him watch R rated movies and take him to hockey games. The largely sedentary Auntie NTE is no longer first (or even, honestly, second or third- which would be sitting at home playing video games) choice and, wow does that sting.
Still, I'll be glad to have them here on Friday, to give me something other than my own gloom to focus on. And - even though I know it is, in part, because of the overwhelming upcoming birthday - Holy Jupiter has this month (/season/past 9 months) been full of gloom for me. Let me just mention this one other thing, real quick, that kind of explains why I've been avoiding this space and writing in general for the last little (ok long) while:
Along with the gloom, which I recognize as both a normal part of grieving and a truly hideous part of grief, I've also been experiencing something a little bit more troubling, because it dabbles its feet in the "how close are we to the edge of depression here, really" pond, and that's terrifying to me. It's something that has been growing since before she died, when I felt like it was just me and UJ in the trenches and everybody else was sending care packages every now and then, but had no idea what it was truly like to be waging war against a disease that made you a stranger to the person you loved so much. And it blossomed once we lost her, and then my sister & her husband were forced to move out, and my mom's depression spiralled downwards, and everybody I knew was fighting their own ridiculously hard battle, and asking for my help, sure, but you can't tell people how alone you feel when they're crying on your shoulder. And somehow, even though I've tried reaching out, I am left, once again, feeling forgotten and outlived.
Which is not the kind of thing you can say to your pregnant baby sister, or your other baby sister who moved to the middle of nowhere again, or your other baby sister who you're so fucking proud of you could burst, but miss more than air sometimes - but it's how I feel. And even though I know that my family is not, in fact, "leaving me behind" (and also that it's not their responsibility to make me feel better about feeling left out, really), but it's kind of hard not to feel that way when you've experienced it so often, just by virtue of being the sick one. First with my high school friends, then when all my college friends started getting jobs and getting married, then when they all had their first round of kids, then their second (and some are now on their third), and this may sound weird, and horrible and selfish, but it recently just occurred to me that this is the first time that I have been the only one living at home, and it makes me feel (ancient and weak and useless and pathetic) a whole boatload of things that I know I am not, but still am feeling.
And, oh my god, so fucking lonely.
Which is why tumblr has been great, because: So many spoonies! and some of them are old like me! (Because holy jebus, the teenagers. Talk about feeling ancient.) So, less lonely: here I come. And a lot of them feel left behind too. So I don't feel so ridiculous about both loving the sight of my sister's gorgeous baby bump (Seriously? She's one of those adorable pregnant people who glow so much they nearly sparkle.) and still being so sad that it isn't me. One of my other sisters recently lost a ton of weight by eating healthy and doing an exercise program, and I was so glad for her, and at the same time, I kind of wanted to punch her in the face. Because I've eaten nothing but cardboard for a year, and I've eaten 3/4 fruits and vegetables for the last 2 years, and I still can't stand up without wanting to die. I miss moving my body and feeling good about it and not resenting everything it took away from me. I miss trusting it. (That's one of her big things, this hippie-crunchy sister of mine, "trust your body, it knows what it needs" which is almost so naive as to be cute, except for how my body apparently knows that it needs to lay on the floor a lot and never move, and make me feel like I'm constantly being crushed by the air? my clothes? gravity? So yeah: hilarious. And rage inducing.)
So, yeah: it's been a rough couple of months - not without its rays of sunshine, of course. In the forms of a family wedding and house guests who like to chat; a baby shower in the making; a couple of kids who grow like weeds having birthdays; a trip to the movies; a birthday trip out for me that included chocolate fondue and a book signing (which - heaven, right?); and even little things like a couple of really good books (a new JK Rowling under a pseudonym? Must acquire immediately!); coming up on finishing a really large (3+years) project; starting some new crafty things; making sisters laugh when they feel like they never will again; a pining Robb Stark (I'll post a picture this week); and learning how to apply makeup correctly for the first time in my life, via Youtube videos.
But this is going to be a hard week, and I'm going to need as much sunshine as possible to make it through, so if you have any, please feel free to share in the comments. Hope your weeks/months are going a little bit cheery-er, and even if they're not, at least you know you're not alone. {God everything I'm writing today is like a therapy session: I'm sorry internet. (I'm not really sorry - it felt kind of good to acknowledge that shit.)}
Showing posts with label Fix It. Show all posts
Showing posts with label Fix It. Show all posts
Tuesday, July 16, 2013
Friday, May 25, 2012
"Some heavy ammunition on your side..."
Just before Christmas, when everything was going
berserk with Grandmother (again) and me (as usual) and Mom (which was new) and all the usual
December craziness (birthdays and shopping and Christmas and doctors, oh my), something happened that hasn't happened to me in a long time, and I've been trying to write about it since, but the words didn't come till now.
I hope getting it out there will stop making it so important in my mind. I write about everything here, so (even though it feels raw still) it'll be worth saying it 'out loud', as it were.
----
Mom & I were driving out to see Grandmother at the rehab (like we were doing every day at that point), and I'd spent the morning chopping up all the ingredients for beef stew and thrown them in the crock pot and turned it on low before we left. And I'm sitting in the car and mom makes some random comment about leaving things on and fires, and blah blah blah, and instead of just being a piece of our normal everyday conversation, it was like SPARK! and that tiny little off-hand remark managed to ignite an instant fire in my brain.
Immediately I started to worry about the crock pot, to reanalyze ever step I'd taken in making the stew - had I really turned it on low, or had I set it to high and it would burn the meat so quickly that it would catch fire? Was it safe to turn it on and leave the house at any setting? Have we ever done this before, even though I read about it all the time on the internet, that people make crock pot stuff and then go to work with it cooking, have we ever personally tried it before? Are we too far from the house to go back and turn it off? Just a constant stampede of 'could I be setting the house of fire' thoughts tumbling around in my brain, while I'm attempting to still chat with mom and seem like everything is ok.
Meanwhile, I know that what I'm worrying about is stupid: We leave all sorts of things - computers, cable boxes, the fridge, the dryer - on at home by themselves all the time. Nothing has ever happened, nothing is going to happen. House fires are rare, and I was careful and made sure the crock pot wasn't near anything and was on low, and I know all of this, and yet, I can't stop worrying. Some fifteen minutes later, it's still in my brain, still rolling around in there, maybe even picking up speed, because it's loud enough now that I've said it out loud, trying to make it seem casual, trying to act like we're still joking. Ha ha! we laugh, as I say "but that wouldn't really happen, right?" Big laughs all around.
Still, 25 minutes into the ride, and now I've been muttering about it and obsessing about it for our entire ride, and my next deliberately casual "It's not dangerous to have left that cooking, right?" pops out of my mouth and Mom says sharply "Oh my god: just let it go already!" Which is the normal response, if a person is just being stupid about something, and it's driving you crazy. But this wasn't just normal "oh, gee: random thought - let's giggle about this some more!" comment.
Nope, by this point I was full steam ahead into my first real anxiety attack in years.
I've had minor ones here and there - during other people's drunken fights, mostly, when I would swear some sort of PTSD part of my brain kicks in and I have to excuse myself from the tension of the current screaming match to go throw up before I can wade into things (either as peacekeeper or firebrand). Sometimes just the sound of the cork popping out of the wine bottle in the kitchen is enough to have my shoulders creeping upwards with tension. But for the most part, I've managed them, and managed to avoid them (which is even better). I wouldn't even say that anxiety is one of my top 20 CFIDS symptoms, probably because I was never not a slightly apprehensive person: it's just part of my genetic make up, I'm afraid.
But these huge panic attacks - of which I've (thankfully) only had about 6 - these huge, really full blown, tornado brain of worry, hold your shit together or you'll lose it monstrosities. When those mothers come, it's so frightening, because you know you don't have to be worrying about the thing, or that worrying about it won't help the situation at all, but you just can't stop yourself. Your brain is a runaway worry train, and you're just along for the ride.
So she snaps at me, semi-facetiously, and I burst into tears. 'It doesn't help,' I tell her 'to tell me that the thing I'm worrying about is stupid. I KNOW IT'S STUPID. Now I just feel even more anxious because I'm ashamed that I'm freaking out over something so dumb."
But here's the thing that people who don't have anxiety don't get. To people without panic attacks (those lucky bastards), it's just like regular worry: "Oh I feel like maybe that wasn't the best choice," but it's not a big deal, because Oh well, shrug. People will worry. It happens. I'm a champion worrier, and that's not what a panic attack is - for me at least. Worry is one thing, panic attack is a whole 'nother level of worry, combined with an astronomical confidence level - confidence in the truth of the fear, that is.
A panic attack is not just dread, but certainty. It is an absolute conviction of doom. I may know full well that whatever has set this off is a ridiculous thing to be worried about, but I am still 1000% sure in my gut that it doesn't matter that the odds are astronomical that something could go wrong: something is telling me that it's not right, so it must be so. Something is warning me to fix the situation, and I'm not heeding the warning, and that goes against every instinct you have. In this case, all the signs are all pointing to the idea that the house will have burned down by the time we get home, and I'm supposed to blithely ignore that and continue on with our day as if nothing is wrong? Impossible: it feels WRONG.
That's when the logical part of my brain shrinks down to nothing, and instead I remember all those news stories about people who 'listened to their gut' and saved their families. Or I replay all the times my feeling that something wasn't right was an accurate representation of the situation, and try to convince myself that this time it's ok to ignore all the DANGERDANGERDANGER signals my brain is trying to send me.
I dripped tears for the remainder of our ride, playing the tapes in my head that I know work to calm me: 'This is just a panic attack, it will pass. This is SO not about the beef stew chica: you're life is feeling more than a little bit out of control right now, don't ya think? Let's just ride this one out, and things will get better. You are not psychic, and the house is not burning down while you ignore all the warning signs - this is not a real threat.' But because it feels like a real threat, it takes me the whole ride to calm down.
I'm not shaking by the time we get to the rehab, but I'm still so ashamed - of the panic attack; of the tears, of not handling things like a grown up and instead breaking down into something useless; of the fact that I've broken a streak of panic! attack! free! years! over something so ridiculous - that we cut short our visit and go home relatively early. I know that this is mom's way of apologizing for snapping at me (which, was nice but I'm not sure it was necessary), and reassuring me all at once.
We arrive home to stew - nothing more. Once I calmed down enough, 99% of me was sure that was all we'd find. But the whole ride home, there's that one percent, that one embarrassed, fear-soaked percent, that's trying to get me ready to deal with the fact that I've failed to save all of our worldly possessions, just because I didn't trust myself enough to say "let's go home and I'll shut that off, and then we'll go." And because of that one measly percent, I'm not reassured, because once that panic genie is out of the bottle, I don't know if I'll be able to stopper him up again.
-----
That's why it took me five months to write this post: because god forbid that I tried to tap back into that feeling enough to write about it, and it exploded all over me again. I had to be sure enough of where I was, emotionally, to write about that, and even that feels like a weakness to me: to be so scared of remembering how scared I was? Panic attacks are ridiculous.
And I was right, about the genie part - I've felt him trying to creep up on me a few times since, but I'm better at recognizing it than I used to be, so I've been cutting them off before the fear can blossom on me (for the most part). And some pretty stressful shit has gone down since then, so I'm feeling like I've got a handle on managing it right now, which is good.
Because the next time I let something out of a bottle, it better be granting wishes, not paralyzing me with fear. (Look: wish number one is all ready!)
I hope getting it out there will stop making it so important in my mind. I write about everything here, so (even though it feels raw still) it'll be worth saying it 'out loud', as it were.
----
Mom & I were driving out to see Grandmother at the rehab (like we were doing every day at that point), and I'd spent the morning chopping up all the ingredients for beef stew and thrown them in the crock pot and turned it on low before we left. And I'm sitting in the car and mom makes some random comment about leaving things on and fires, and blah blah blah, and instead of just being a piece of our normal everyday conversation, it was like SPARK! and that tiny little off-hand remark managed to ignite an instant fire in my brain.
Immediately I started to worry about the crock pot, to reanalyze ever step I'd taken in making the stew - had I really turned it on low, or had I set it to high and it would burn the meat so quickly that it would catch fire? Was it safe to turn it on and leave the house at any setting? Have we ever done this before, even though I read about it all the time on the internet, that people make crock pot stuff and then go to work with it cooking, have we ever personally tried it before? Are we too far from the house to go back and turn it off? Just a constant stampede of 'could I be setting the house of fire' thoughts tumbling around in my brain, while I'm attempting to still chat with mom and seem like everything is ok.
Meanwhile, I know that what I'm worrying about is stupid: We leave all sorts of things - computers, cable boxes, the fridge, the dryer - on at home by themselves all the time. Nothing has ever happened, nothing is going to happen. House fires are rare, and I was careful and made sure the crock pot wasn't near anything and was on low, and I know all of this, and yet, I can't stop worrying. Some fifteen minutes later, it's still in my brain, still rolling around in there, maybe even picking up speed, because it's loud enough now that I've said it out loud, trying to make it seem casual, trying to act like we're still joking. Ha ha! we laugh, as I say "but that wouldn't really happen, right?" Big laughs all around.
Still, 25 minutes into the ride, and now I've been muttering about it and obsessing about it for our entire ride, and my next deliberately casual "It's not dangerous to have left that cooking, right?" pops out of my mouth and Mom says sharply "Oh my god: just let it go already!" Which is the normal response, if a person is just being stupid about something, and it's driving you crazy. But this wasn't just normal "oh, gee: random thought - let's giggle about this some more!" comment.
Nope, by this point I was full steam ahead into my first real anxiety attack in years.
I've had minor ones here and there - during other people's drunken fights, mostly, when I would swear some sort of PTSD part of my brain kicks in and I have to excuse myself from the tension of the current screaming match to go throw up before I can wade into things (either as peacekeeper or firebrand). Sometimes just the sound of the cork popping out of the wine bottle in the kitchen is enough to have my shoulders creeping upwards with tension. But for the most part, I've managed them, and managed to avoid them (which is even better). I wouldn't even say that anxiety is one of my top 20 CFIDS symptoms, probably because I was never not a slightly apprehensive person: it's just part of my genetic make up, I'm afraid.
But these huge panic attacks - of which I've (thankfully) only had about 6 - these huge, really full blown, tornado brain of worry, hold your shit together or you'll lose it monstrosities. When those mothers come, it's so frightening, because you know you don't have to be worrying about the thing, or that worrying about it won't help the situation at all, but you just can't stop yourself. Your brain is a runaway worry train, and you're just along for the ride.
So she snaps at me, semi-facetiously, and I burst into tears. 'It doesn't help,' I tell her 'to tell me that the thing I'm worrying about is stupid. I KNOW IT'S STUPID. Now I just feel even more anxious because I'm ashamed that I'm freaking out over something so dumb."
But here's the thing that people who don't have anxiety don't get. To people without panic attacks (those lucky bastards), it's just like regular worry: "Oh I feel like maybe that wasn't the best choice," but it's not a big deal, because Oh well, shrug. People will worry. It happens. I'm a champion worrier, and that's not what a panic attack is - for me at least. Worry is one thing, panic attack is a whole 'nother level of worry, combined with an astronomical confidence level - confidence in the truth of the fear, that is.
A panic attack is not just dread, but certainty. It is an absolute conviction of doom. I may know full well that whatever has set this off is a ridiculous thing to be worried about, but I am still 1000% sure in my gut that it doesn't matter that the odds are astronomical that something could go wrong: something is telling me that it's not right, so it must be so. Something is warning me to fix the situation, and I'm not heeding the warning, and that goes against every instinct you have. In this case, all the signs are all pointing to the idea that the house will have burned down by the time we get home, and I'm supposed to blithely ignore that and continue on with our day as if nothing is wrong? Impossible: it feels WRONG.
That's when the logical part of my brain shrinks down to nothing, and instead I remember all those news stories about people who 'listened to their gut' and saved their families. Or I replay all the times my feeling that something wasn't right was an accurate representation of the situation, and try to convince myself that this time it's ok to ignore all the DANGERDANGERDANGER signals my brain is trying to send me.
I dripped tears for the remainder of our ride, playing the tapes in my head that I know work to calm me: 'This is just a panic attack, it will pass. This is SO not about the beef stew chica: you're life is feeling more than a little bit out of control right now, don't ya think? Let's just ride this one out, and things will get better. You are not psychic, and the house is not burning down while you ignore all the warning signs - this is not a real threat.' But because it feels like a real threat, it takes me the whole ride to calm down.
I'm not shaking by the time we get to the rehab, but I'm still so ashamed - of the panic attack; of the tears, of not handling things like a grown up and instead breaking down into something useless; of the fact that I've broken a streak of panic! attack! free! years! over something so ridiculous - that we cut short our visit and go home relatively early. I know that this is mom's way of apologizing for snapping at me (which, was nice but I'm not sure it was necessary), and reassuring me all at once.
We arrive home to stew - nothing more. Once I calmed down enough, 99% of me was sure that was all we'd find. But the whole ride home, there's that one percent, that one embarrassed, fear-soaked percent, that's trying to get me ready to deal with the fact that I've failed to save all of our worldly possessions, just because I didn't trust myself enough to say "let's go home and I'll shut that off, and then we'll go." And because of that one measly percent, I'm not reassured, because once that panic genie is out of the bottle, I don't know if I'll be able to stopper him up again.
-----
That's why it took me five months to write this post: because god forbid that I tried to tap back into that feeling enough to write about it, and it exploded all over me again. I had to be sure enough of where I was, emotionally, to write about that, and even that feels like a weakness to me: to be so scared of remembering how scared I was? Panic attacks are ridiculous.
And I was right, about the genie part - I've felt him trying to creep up on me a few times since, but I'm better at recognizing it than I used to be, so I've been cutting them off before the fear can blossom on me (for the most part). And some pretty stressful shit has gone down since then, so I'm feeling like I've got a handle on managing it right now, which is good.
Because the next time I let something out of a bottle, it better be granting wishes, not paralyzing me with fear. (Look: wish number one is all ready!)
Wednesday, April 11, 2012
guess what?
I stopped writing again. And taking pictures. And talking to people outside of my house. And doing anything just for fun. Not all the way - there was some writing, and some fun, and some pictures, but for the most part? I just stopped.
Which, if you've been here any length of time, you might recognize as a sign of Very Bad Things.
And there were some Very Bad Things -
- My grandmother has been getting worse, then better, then worse, then better again for months now, and a very large part of me wants to shut down what I'm doing here at home (which isn't much, to be honest) and move in over there again. If I thought I would be a real help, I would do it in a second. But right now, it's all just question marks, and 'why is she getting worse?' and 'but now she's better so let's forget about figuring out why she was worse: send her home', and so much nonsense.
- I saw a "pain specialist" at the pain clinic that Zack sent me to and he came in the room, looked at me and my chart and said "I have nothing good to tell you and you will leave here disappointed." Disappointed didn't really cover it, though, because, against all of my self protective instincts, I actually go into these things hoping that they'll be able to help (god forbid!), and I left the appointment wanting to set things on fire - my mother said she couldn't think of a good place for a fire, however, which was also disappointing. He told me nothing new, gave me the 'stay the course' speech, and still, by the end, when the nurse came in to give me the 'you can go now' part of the speech, and she was very sweet and conciliatory, I wanted to burst into tears - she knew that he wasn't going to be able to help me, I knew it, Zack knew it. Doesn't matter, for some reason. Still felt like getting kicked in the face, one more time.
- Things around the house have been... I guess awkward is the best descriptor I can think of. The not drinking is going really well (at least in the house: there is an increase in dinners out of the house, just my parents, and I don't believe those are totally sober, but you have to go with what people tell you until they prove otherwise), but it's still awkward. There are things you can't say, places you can't go. And there's still the belief that an apology is enough, which I am not finding to be true. He has said he's sorry, but ... i don't know how to get across to him that he has things in our relationship that need to be repaired, that require effort on his part. He thinks the not drinking should be effort enough, and I am conflicted about whether it is or not. (It feels like it should be, and also that it shouldn't be: that makes no sense at all to anyone but me, I am sure.)
- There's a distinct lack of children. What with all of the kids being in school (or two hours away), there are only weekends and vacations during which I can be around the little people I love. (Also: note to self: there's really only one 'little' person left, and he's two hours away. The kids I see regularly are going to be 6 and 12 (!) in less than a month.) I love that their growing older - the depth of stuff we can do: book signings and museum trips and dollar store challenges - is ever expanding, but I'm also kind of sad that there's no little bits to tuck in for nap time or sing silly songs with. Only Lil Girl came to decorate eggs this week - her big brother was busy playing hockey. It was the first time he was 'too big' for something like that, and there was a definite twinge in my heart area: I do not know what I will do when it's time to visit Santa and he rolls his eyes and says 'no thanks.'
- There's also a distinct lack of my children, and the reality of that perhaps being a permanent situation is starting to feel overwhelming. I know it is not impossible, and I know there's still some time left for that to happen for me, but ... it's not on the horizon, if that makes sense. I can barely function most of the time, healthwise, and I can't see adding the complications of children into the mix. At least not now, and not now, I'm starting to realize, has been going on for at least ten years. It's starting to get to the point of 'if not now, when?' That's a really hard question to answer, for a girl who's always wanted to be a mom, but can't see how that would happen.
- Then there's assorted what the fuck-ery: my SSI getting screwed up (for the second time since December), and having to deal with all the phone calls that entails; this whole diabetes, math at meals thing, which is like torture because there are so! many! numbers! and I hate numbers; all of the stuff that I'm supposed to be doing in the house that isn't getting done; random infections; other family members' health issues; and on and on and on.
So there's been some stuff, is what I'm saying. But not writing about the stuff gets me into trouble, so I'm re-committing (for the Xth time) to writing here more often. At least once a week, hopefully more. About stuff that matters, not just random gobbledegook. So I shall see you all back here, very soon. Till then, be As Well As Possible.
Which, if you've been here any length of time, you might recognize as a sign of Very Bad Things.
And there were some Very Bad Things -
- My grandmother has been getting worse, then better, then worse, then better again for months now, and a very large part of me wants to shut down what I'm doing here at home (which isn't much, to be honest) and move in over there again. If I thought I would be a real help, I would do it in a second. But right now, it's all just question marks, and 'why is she getting worse?' and 'but now she's better so let's forget about figuring out why she was worse: send her home', and so much nonsense.
- I saw a "pain specialist" at the pain clinic that Zack sent me to and he came in the room, looked at me and my chart and said "I have nothing good to tell you and you will leave here disappointed." Disappointed didn't really cover it, though, because, against all of my self protective instincts, I actually go into these things hoping that they'll be able to help (god forbid!), and I left the appointment wanting to set things on fire - my mother said she couldn't think of a good place for a fire, however, which was also disappointing. He told me nothing new, gave me the 'stay the course' speech, and still, by the end, when the nurse came in to give me the 'you can go now' part of the speech, and she was very sweet and conciliatory, I wanted to burst into tears - she knew that he wasn't going to be able to help me, I knew it, Zack knew it. Doesn't matter, for some reason. Still felt like getting kicked in the face, one more time.
- Things around the house have been... I guess awkward is the best descriptor I can think of. The not drinking is going really well (at least in the house: there is an increase in dinners out of the house, just my parents, and I don't believe those are totally sober, but you have to go with what people tell you until they prove otherwise), but it's still awkward. There are things you can't say, places you can't go. And there's still the belief that an apology is enough, which I am not finding to be true. He has said he's sorry, but ... i don't know how to get across to him that he has things in our relationship that need to be repaired, that require effort on his part. He thinks the not drinking should be effort enough, and I am conflicted about whether it is or not. (It feels like it should be, and also that it shouldn't be: that makes no sense at all to anyone but me, I am sure.)
- There's a distinct lack of children. What with all of the kids being in school (or two hours away), there are only weekends and vacations during which I can be around the little people I love. (Also: note to self: there's really only one 'little' person left, and he's two hours away. The kids I see regularly are going to be 6 and 12 (!) in less than a month.) I love that their growing older - the depth of stuff we can do: book signings and museum trips and dollar store challenges - is ever expanding, but I'm also kind of sad that there's no little bits to tuck in for nap time or sing silly songs with. Only Lil Girl came to decorate eggs this week - her big brother was busy playing hockey. It was the first time he was 'too big' for something like that, and there was a definite twinge in my heart area: I do not know what I will do when it's time to visit Santa and he rolls his eyes and says 'no thanks.'
- There's also a distinct lack of my children, and the reality of that perhaps being a permanent situation is starting to feel overwhelming. I know it is not impossible, and I know there's still some time left for that to happen for me, but ... it's not on the horizon, if that makes sense. I can barely function most of the time, healthwise, and I can't see adding the complications of children into the mix. At least not now, and not now, I'm starting to realize, has been going on for at least ten years. It's starting to get to the point of 'if not now, when?' That's a really hard question to answer, for a girl who's always wanted to be a mom, but can't see how that would happen.
- Then there's assorted what the fuck-ery: my SSI getting screwed up (for the second time since December), and having to deal with all the phone calls that entails; this whole diabetes, math at meals thing, which is like torture because there are so! many! numbers! and I hate numbers; all of the stuff that I'm supposed to be doing in the house that isn't getting done; random infections; other family members' health issues; and on and on and on.
So there's been some stuff, is what I'm saying. But not writing about the stuff gets me into trouble, so I'm re-committing (for the Xth time) to writing here more often. At least once a week, hopefully more. About stuff that matters, not just random gobbledegook. So I shall see you all back here, very soon. Till then, be As Well As Possible.
Wednesday, March 07, 2012
Dear Scholastic,
As a geeky bookworm of a kid, I looked forward to nothing more than Scholastic Book day at school - the day those thin, two page booklets full of books to buy would get passed out. We rarely ordered from them (my grandmother was a teacher, so if we had stuff we really wanted, she'd order for us with her class order), but the idea that there were all these new (to me) books to add to my library list was one of my favorite parts of school, hands down. And I've read a million excellent books that you've published, or had a part in, and, as a former K/1st Gr teacher, taught out of more than one of them myself. That's why I was disheartened this morning to see these two specific groupings of books available for sale through one of my many daily deal outlets:
I'm going to be really clear and say that I have obviously not read these books, and hope that there is not such a great difference between the two sets as the titles imply, but it seems unlikely that this could be so. The titles make it clear that the girls' set is concerned with appearances and relationships - things girls can be into; while the boys' set is equally stereotypical - boys need to survive and have adventures, can face challenges. Is this the message we should be sending to our children - not just our girls, who need to know they can face challenges too, and don't have to be glamorous while doing so, but also to our boys, who should also be capable of being good friends? Is there a reason why girls can't be adventurous as well as glamorous? Or why boys can't be gods who know how to survive anything? This kind of gender binary crap is beneath you.
Yes: both boys and girls have their own guide to being the "best at anything," and hopefully the chapters of those books are less gendered - although a quick glimpse of their Amazon book descriptions does not bear out that hope. The boy's book includes how tos on all sorts of interesting things:
I just don't get it, and I would hope that a company that is dedicated to helping educate children would endeavor to help them learn that they don't need to be limited by what a girl/boy should do. So, Scholastic: You Can Do Better.
Sincerely, NTE
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| The Girl's Book of Glamour: A Guide to Being A Goddess; The Girls' Book: How to be the Best At Everything; The Girls' Book of Friendship: How to Be the Best Friend Ever. |
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| The Boys' Book of Adventure: Are You Ready to Face the Challenge?; The Boy's Guide: How to Be the Best at Everything; The Boys' Book of Survival: How to Survive Anything, Anywhere. |
I'm going to be really clear and say that I have obviously not read these books, and hope that there is not such a great difference between the two sets as the titles imply, but it seems unlikely that this could be so. The titles make it clear that the girls' set is concerned with appearances and relationships - things girls can be into; while the boys' set is equally stereotypical - boys need to survive and have adventures, can face challenges. Is this the message we should be sending to our children - not just our girls, who need to know they can face challenges too, and don't have to be glamorous while doing so, but also to our boys, who should also be capable of being good friends? Is there a reason why girls can't be adventurous as well as glamorous? Or why boys can't be gods who know how to survive anything? This kind of gender binary crap is beneath you.
Yes: both boys and girls have their own guide to being the "best at anything," and hopefully the chapters of those books are less gendered - although a quick glimpse of their Amazon book descriptions does not bear out that hope. The boy's book includes how tos on all sorts of interesting things:
Found yourself in a sticky situation? Inside you'll learn how to escape quicksand (p. 40), build a raft (p.41), start a survival fire (p.99), or fly a helicopter (p. 11).while the girls choices are certainly more stereotypically 'girly':
Want to impress your friends? Now you can rip a phonebook in half (p. 35), hypnotize a chicken (p. 56), or read their minds (p. 73).
Boring Saturday afternoon? Not anymore when you find out how to make a waterbomb (p. 79), a boomerang (p. 95), or a volcano (p. 88).
And loads of other keen things you need to know how to do!
Want to be known for your unique style? Inside you'll learn how to design your own clothes (p. 35), do the perfect manicure (p. 82), or make your own lip gloss (p. 11).Here's the thing: I get that these books follow a trend - following The Dangerous Book for Boys book that came out a few years ago, and it's Daring Book for Girls cohort - and that there's a call for these kind of books with all these different skill sets that are seen as retro throwbacks to when kids knew things like how to play cat's cradle and build a campfire out of sticks. I even think the two books I just mentioned were both interesting and informative (if similarly gender-biased). I just don't get why it has to be so gender specific: I know more than one boy who could use some information about how to deal with a bully and am sure there are some who would be interested in making crystals or scrapbooks (if only they weren't just for girls!) And I was a young girl, and I happen to know a few of them currently - (me and) every single one of them would like to read minds, loves to play with waterbombs, and would be the hit of a party if she could rip a phonebook in half. I mean: c'mon.
Feel like impressing your friends? Show them how you can make a crystal (p. 16), juggle one-handed (p. 33), or deal with a bully (p. 42).
Bored and need something to do? Not anymore when you find out how to keep a secret diary (p. 88), make a scrapbook (p. 9), or put together a dance routine (p. 24).
And tons of other neat-o things you need to know how to do!
I just don't get it, and I would hope that a company that is dedicated to helping educate children would endeavor to help them learn that they don't need to be limited by what a girl/boy should do. So, Scholastic: You Can Do Better.
Sincerely, NTE
Thursday, February 02, 2012
I've been writing letters
Some actually got sent (mostly advocacy ones), and some are just rolling around in my brain, and some I typed up just to get them to stop rolling around in my brain - with no plan of ever sending them. But there might be a couple of letter posts in a row, here, just so you know. To start us off, here are two that go together -
Dear Therapist Who Apparently Has No Compassion/Home Health Aide Who is Too Rough/Nurse Who is Rolling Your Eyes Right Now,
I know my grandmother is stubborn - it's kind of a point of pride, in our family, that we are all 'strong willed,' but nobody as much as she. I know that, at 94, it is sometimes hard for her to adapt to new situations as quickly as you all would like her to. But I think it also would behoove you to remember that she's not stupid, that she did, somehow survive for these past 94 years, doing the best she could. This is a woman who has lived through a lot - 2 World Wars, technically! A major car accident! Being a nurse on the maternity ward when losing mothers and babies was seen as the cost of doing business! She has raised nine children, one with Down's Syndrome, and helped raise at least one of her grandchildren. She lost her mother when she was a child, her father almost 40 years ago, all of her 5 siblings, half of her children as adults, and her spouse. She's a tough lady, is what I'm saying, and she's hurting. Physically and emotionally.
So, maybe you take your time going through today's exercises with her, or cut her some slack for not doing them when she had the stomach flu? Maybe you take her word for it when she says that something feels different, not just assume it's just something she never noticed before. No: she won't always follow directions blindly, which might be easier for you, but wouldn't be for her. It's pretty reasonable for her to ask questions about something she knows very little about, so maybe rolling your eyes isn't the best response. Also?
Could you look up from your god damn schedule/paperwork/planned assignment for today just for a minute and recognize that what you want to do and what she needs are not always the same thing? She's not inside your little laptop - she's sitting right in front of you, and she's scared (though she'd never tell you that) and she's pissed (which you might have gleaned) and she's frustrated (because '8 weeks should be long enough!') and she's hurting (because she fell down the stairs. And broke her arm. And had five screws put in. And is ninety four frigging years old!)
So let's try out that bedside manner you're supposed to have in there somewhere, and give empathy a shot for a little bit. It won't hurt you, I promise. And it'll make things a whole lot easier on her.
Trying not to hate you right now,
NTE
Dear Every Other Person We Have Worked with in the Past 8 Weeks,
I appreciate your patience and your kindness and your understanding with my grandmother. I know she has not always been the best patient, but thank you for realizing that it is for valid reasons, and that she's doing the best she can, even when all that is is refusing to do what you want her to do. She really is recovering incredibly well, and I know it is, in large part, due to your help. She knows it too, and I think, has shown you all how grateful she is (even though she is also telling you how frustrating it is to need your help). Many of you have commented on her spirit, and how gutsy she is: I agree. Some of you have noticed when she is feeling a little low, and have tried to listen to what she needs - even if all that is is listening, or cutting her toenails, or remembering to wipe your feet before you come into her house when it's raining out, and I could not appreciate it more. She's a special lady, my grandmother, and it's nice to know you all think so too.
With my very sincere thanks,
NTE
Dear Therapist Who Apparently Has No Compassion/Home Health Aide Who is Too Rough/Nurse Who is Rolling Your Eyes Right Now,
I know my grandmother is stubborn - it's kind of a point of pride, in our family, that we are all 'strong willed,' but nobody as much as she. I know that, at 94, it is sometimes hard for her to adapt to new situations as quickly as you all would like her to. But I think it also would behoove you to remember that she's not stupid, that she did, somehow survive for these past 94 years, doing the best she could. This is a woman who has lived through a lot - 2 World Wars, technically! A major car accident! Being a nurse on the maternity ward when losing mothers and babies was seen as the cost of doing business! She has raised nine children, one with Down's Syndrome, and helped raise at least one of her grandchildren. She lost her mother when she was a child, her father almost 40 years ago, all of her 5 siblings, half of her children as adults, and her spouse. She's a tough lady, is what I'm saying, and she's hurting. Physically and emotionally.
So, maybe you take your time going through today's exercises with her, or cut her some slack for not doing them when she had the stomach flu? Maybe you take her word for it when she says that something feels different, not just assume it's just something she never noticed before. No: she won't always follow directions blindly, which might be easier for you, but wouldn't be for her. It's pretty reasonable for her to ask questions about something she knows very little about, so maybe rolling your eyes isn't the best response. Also?
Could you look up from your god damn schedule/paperwork/planned assignment for today just for a minute and recognize that what you want to do and what she needs are not always the same thing? She's not inside your little laptop - she's sitting right in front of you, and she's scared (though she'd never tell you that) and she's pissed (which you might have gleaned) and she's frustrated (because '8 weeks should be long enough!') and she's hurting (because she fell down the stairs. And broke her arm. And had five screws put in. And is ninety four frigging years old!)
So let's try out that bedside manner you're supposed to have in there somewhere, and give empathy a shot for a little bit. It won't hurt you, I promise. And it'll make things a whole lot easier on her.
Trying not to hate you right now,
NTE
Dear Every Other Person We Have Worked with in the Past 8 Weeks,
I appreciate your patience and your kindness and your understanding with my grandmother. I know she has not always been the best patient, but thank you for realizing that it is for valid reasons, and that she's doing the best she can, even when all that is is refusing to do what you want her to do. She really is recovering incredibly well, and I know it is, in large part, due to your help. She knows it too, and I think, has shown you all how grateful she is (even though she is also telling you how frustrating it is to need your help). Many of you have commented on her spirit, and how gutsy she is: I agree. Some of you have noticed when she is feeling a little low, and have tried to listen to what she needs - even if all that is is listening, or cutting her toenails, or remembering to wipe your feet before you come into her house when it's raining out, and I could not appreciate it more. She's a special lady, my grandmother, and it's nice to know you all think so too.
With my very sincere thanks,
NTE
Friday, January 20, 2012
In the ball pit
I do this thing where I start thinking - really thinking - about something that's important: Have you noticed this about yourself? Is there a reason why you have to run your mouth like that/act so awkward around new people/ be unbelievably cranky for no good reason? And as soon as the truth about the thing starts rushing at me - as soon as I'm starting to get to the meat of the issue, or when it starts to sort of click in my head that this is not a unique occurrence, that I sometimes act like this and maybe it is a pattern... well, when the truth starts rushing at me, I start rushing away. Is there anybody who needs tending or talking to, or playing with? Isn't there a show on right now that I can escape into, be mindless with? Isn't there a book I could read that would take me anywhere but here, facing the truth? It's such an uncomfortable feeling, this realizing things about yourself, and I would do just about anything to avoid it, I think.
When it does come, and I have seen the whole, frustrating, ill fitting truth about myself, it sticks in my brain: a large scaly burr just big enough and irritating enough to block out anything else. I have no other qualities except this uncomfortable truth - I am no longer a good person, a caring sister, a hard worker - I am only an inveterate gossip, a gigantic fraud, a loathsome individual who feels lonely until she's with people and then wants nothing more than to be left alone. Even though I know that this is not true - that all the good things I am or do are not obliterated by some newfound/newly understood flaw in my character - it is how it feels, and sometimes how it feels is how it is.
I have recently come to quite a few uncomfortable realizations about myself, and trying to integrate those things - a certain pettiness here, a confounding inability stick to the straight facts there - into my vision of who I am is proving more difficult than I'd have guessed. I have always known that I wasn't perfect ~ contrary to what others may think, I am well aware that my goody-two shoes image is just something other people see me as - I have never seen myself as such, and wouldn't really care to. But these inconsistencies in my character - the difference between who I want myself to be and who I really am, these are things I want to fix, to change. And that means recognizing them first, figuring out how deep they run and (maybe) where they come from, and how to stop doing them. It's a lot of heavy mental lifting, and, for a person who has limited reserves of any kind of energy - physical, mental, emotional - it certainly seems Sisyphean.
So I keep looking for low energy escapes - can I ever get my Google Reader below a thousand again? Is Reddit being entertaining or insulting today? Is there any way I can get my uncle to have a conversation with people so that they don't think he's an ogre? Let me organize every photo you've ever taken in your whole life! - and then condemning myself for needing these escape routes. It feels like I'm stumbling around kicking at little pebbles, all the while trying to avoid all the heavy boulders I know I have to move if I want to move forward, but just can't even look at yet.
It feels that way about everything - about all the work I have to do to manage my illnesses (and the question of when I decided that just 'managing' is enough for me), about all the things in my own behavior that I'd like to change; about all the topics in my family that need addressing, and all the ways we find of not addressing them; about not making time for friends and then wondering why they aren't making time for me; about the world as a whole and all the things spinning out of control in it. It just feels like there's too many important things that should get looked at, poked at, lifted up and examined, fixed, and I don't want to touch a single one of them.
A perfect example in the physical world is that my space is still not undecorated from Christmas - oh, the actual decorations are down, but the furniture is still all in the wrong places for every day living. Thus making it more difficult to do things like get towels, because we moved the cart that holds the towels behind the chair, so you have to climb over the chair to get ready to take a shower. It's little ridiculous things like that, but also huge life changing things like deciding to call the PT again, and see where that takes me, or actually changing my diet enough to prevent this diabetes thing from happening - and I just don't want to face any of it at all.
And here I write the necessary caveats that "we've all been sick since Christmas! - and I mean sick sick, like the flu that won't die sick" and "I've just spent two months caring for a wonderful lady, whose head is harder than the stairs she fell down!" and "blah blah blah Chronic Illness, you idiot!" but all of that - while true and real and just so much - doesn't feel like enough of a reason to let everything else pass me by. I never feel like I am juggling half of the balls I need to juggle, there's just me, standing with maybe the three or four largest, most fragile balls, throwing them up and catching them (sometimes by the skin of my teeth, but still, catching them), and all the while, the floor around me is littered with a million other smaller balls.... It's basically me, standing up to my waist in the ball pit of Chuck E Cheese, trying to catch all these biggest balls, but knowing I've let a thousand more go. And not knowing which of those thousand was the next most important - the one that needed me now, and I won't get to it for another three weeks.
I don't know what to do about all that - how to climb out of the ball pit, or juggle better, or even begin identifying the colors of all the stupid things I'm standing in. I know this feeling will pass, or fade, because it has in the past, but it never goes away... I'm always fumbling something, and I wish I knew how to stop.
When it does come, and I have seen the whole, frustrating, ill fitting truth about myself, it sticks in my brain: a large scaly burr just big enough and irritating enough to block out anything else. I have no other qualities except this uncomfortable truth - I am no longer a good person, a caring sister, a hard worker - I am only an inveterate gossip, a gigantic fraud, a loathsome individual who feels lonely until she's with people and then wants nothing more than to be left alone. Even though I know that this is not true - that all the good things I am or do are not obliterated by some newfound/newly understood flaw in my character - it is how it feels, and sometimes how it feels is how it is.
I have recently come to quite a few uncomfortable realizations about myself, and trying to integrate those things - a certain pettiness here, a confounding inability stick to the straight facts there - into my vision of who I am is proving more difficult than I'd have guessed. I have always known that I wasn't perfect ~ contrary to what others may think, I am well aware that my goody-two shoes image is just something other people see me as - I have never seen myself as such, and wouldn't really care to. But these inconsistencies in my character - the difference between who I want myself to be and who I really am, these are things I want to fix, to change. And that means recognizing them first, figuring out how deep they run and (maybe) where they come from, and how to stop doing them. It's a lot of heavy mental lifting, and, for a person who has limited reserves of any kind of energy - physical, mental, emotional - it certainly seems Sisyphean.
So I keep looking for low energy escapes - can I ever get my Google Reader below a thousand again? Is Reddit being entertaining or insulting today? Is there any way I can get my uncle to have a conversation with people so that they don't think he's an ogre? Let me organize every photo you've ever taken in your whole life! - and then condemning myself for needing these escape routes. It feels like I'm stumbling around kicking at little pebbles, all the while trying to avoid all the heavy boulders I know I have to move if I want to move forward, but just can't even look at yet.
It feels that way about everything - about all the work I have to do to manage my illnesses (and the question of when I decided that just 'managing' is enough for me), about all the things in my own behavior that I'd like to change; about all the topics in my family that need addressing, and all the ways we find of not addressing them; about not making time for friends and then wondering why they aren't making time for me; about the world as a whole and all the things spinning out of control in it. It just feels like there's too many important things that should get looked at, poked at, lifted up and examined, fixed, and I don't want to touch a single one of them.
A perfect example in the physical world is that my space is still not undecorated from Christmas - oh, the actual decorations are down, but the furniture is still all in the wrong places for every day living. Thus making it more difficult to do things like get towels, because we moved the cart that holds the towels behind the chair, so you have to climb over the chair to get ready to take a shower. It's little ridiculous things like that, but also huge life changing things like deciding to call the PT again, and see where that takes me, or actually changing my diet enough to prevent this diabetes thing from happening - and I just don't want to face any of it at all.
And here I write the necessary caveats that "we've all been sick since Christmas! - and I mean sick sick, like the flu that won't die sick" and "I've just spent two months caring for a wonderful lady, whose head is harder than the stairs she fell down!" and "blah blah blah Chronic Illness, you idiot!" but all of that - while true and real and just so much - doesn't feel like enough of a reason to let everything else pass me by. I never feel like I am juggling half of the balls I need to juggle, there's just me, standing with maybe the three or four largest, most fragile balls, throwing them up and catching them (sometimes by the skin of my teeth, but still, catching them), and all the while, the floor around me is littered with a million other smaller balls.... It's basically me, standing up to my waist in the ball pit of Chuck E Cheese, trying to catch all these biggest balls, but knowing I've let a thousand more go. And not knowing which of those thousand was the next most important - the one that needed me now, and I won't get to it for another three weeks.
I don't know what to do about all that - how to climb out of the ball pit, or juggle better, or even begin identifying the colors of all the stupid things I'm standing in. I know this feeling will pass, or fade, because it has in the past, but it never goes away... I'm always fumbling something, and I wish I knew how to stop.
Monday, November 14, 2011
Patients For A Moment
Kathy, over at FibroDaze will be hosting the next Patients For A Moment blog carnival next week, and her topic -
I'm currently trying to get a handle on at least two startling new diagnoses - That I am either diabetic or pre-diabetic (depending on when I take the stupid blood test), and that my gall bladder seems to want to attack me for no good reason at all. (Which, unfortunately, makes it not all that unusual from any other organ or part of my body - "Reasons? We don't need no stinkin' reasons!") I'm also undergoing some testing for an undiagnosed liver issue, which will bring my sum total of chronic conditions up to Way Too Damn Many + Infinity.
All three of these new issues, plus an injury from a recent fall, have definitely thrown me - More than once I've thought to myself, "But I barely have a handle on everything I already knew was wrong, I don't know how to add these into the mix!" And I won't sugarcoat it ~ So far, my main coping mechanism has been flat out denial: I will deal with it by not dealing with it. That is what I would like to do with each and every illness I happen to have ... I'd like to ignore it until it goes away. Until it decides that I am no longer worth its time, energy, or effort, and just ... leaves. But I also know that there is no way in hell this is going to happen. I mean, it's not like I don't recognize that this isn't a great coping skill; it's just my fallback position.
Still, denial can only last for so long (I hope), and eventually my brain turns back on, and I realize I have to do something. I'd say I'm currently smack dab in the middle of this second phase of coming to terms with the newest issues that have been heaped onto my plate: Full out educational immersion.
Deep down, I'm a geek, a scholar, a nerd. I live my life with the firm belief that there's just about nothing that can't be made better by reading about it - even when I'm upset, I'm curled up with a book, trying to connect to something that will make me feel better. (The way I knew, all those years ago, that my depression wasn't just run of the mill sad/a tiny bit of malaise? Was that I stopped being able to enjoy words - reading them, writing them, interacting with them... it was all suddenly bland and useless, and that's when I knew something was dreadfully wrong.) So, faced with new challenges that I have no idea how I'm going to meet, I head to books, I head to the computer, I head to the library, and I start stuffing as many facts and theories and strategies into my brain as is humanly possible, in the hopes that something will make this easier.
So far, I've done a done of reading up on diabetic food choices (not diets, because I am not good with diets, but choosing foods that will work better with my body's new issues), which is good, because the nutritionist they sent me to explained things like "you have to eat some vegetables every day" and "the way to figure out how many calories are in what you are eating is to read it right here on the box, let me show it to you", and was utterly useless in every single way. I've researched what my blood glucose numbers might mean - again, thanks for all your not help, Nutrition Lady - and why the Hemoglobin A1c test that I took could have such varied results, and how I'm probably not diabetic, but I should try to address things before I become diabetic.
I've looked up the gall-bladder (anatomy - who remembers where all those stupid organs are hiding?), and tried to make sense of the internet's explanations of how something that lives under your ribcage, down by your belly button (ish) can cause pain up behind your shoulder blade, because that is some real ridiculousness right there, human body, and it must be explained. I've tried to figure out how to peacefully combine the gall-bladder attack prevention diet and the pre-diabetic food choices into a livable mealtime strategy. (Have not succeeded, by the way, but am working on it.) I've gone back to some of my favorite chronic illness blogs and looked for relatable, motivational & understanding words; Have reread a couple of books I find inspiring, in the hopes of prodding myself into taking next steps.
I'm accumulating wisdom by the bucketloads, so that the next time I go to the doctor, I won't be so blindsided by what they're saying, and will hopefully be able to ask relevant questions and actually make progress on things.
It's not the final thing I have to do to make things run more smoothly again - at some point all of that theory and supposition will have to turn into action, and I am sort of dreading that step already - but it's still vital. It's the 'getting my feet back under me' portion of adapting to change. The process I have to go through to go from "Hell's no: this is not happening again!" to "Ok: it's happening, let's deal... I know I can pull this off!"
Yes, I'm disappointed to find myself, 17 years later, under continued attack from so many various parts of my body. Yes, I'm frustrated as hell that, instead of improving, things just seem to keep getting worse and worse, and that I still haven't gotten to the root of these illnesses, or figured out a way to get rid of them, or how to achieve all the things I want to achieve in my life. It's beyond frustrating, so much so that when I went to the thesaurus just now to look up a stronger word, one that fit better, I couldn't find one. It's all of them - upsetting, disheartening, prohibitive, discouraging, defeating, baffling, hindering, depleting - every synonym, all combined together and multiplied a few thousand times. All of those words to the nth degree.
But, when I find myself here, at a place that is both familiar and shockingly not, faced with new diagnoses all over again, at least this time I've got some idea of how to get further along down the line: Stuff brain with as much as it can handle, take breaks in denial land as needed, and know that you can handle it, whatever comes.
"When you have made some sort of peace and are coping with the chronic illnesses you do have and “life” throws you curve balls in the form of a new diagnosis, how do you deal? What are your coping mechanisms? How do you come to terms with the new diagnosis?"is, unfortunately right up my alley.
I'm currently trying to get a handle on at least two startling new diagnoses - That I am either diabetic or pre-diabetic (depending on when I take the stupid blood test), and that my gall bladder seems to want to attack me for no good reason at all. (Which, unfortunately, makes it not all that unusual from any other organ or part of my body - "Reasons? We don't need no stinkin' reasons!") I'm also undergoing some testing for an undiagnosed liver issue, which will bring my sum total of chronic conditions up to Way Too Damn Many + Infinity.
All three of these new issues, plus an injury from a recent fall, have definitely thrown me - More than once I've thought to myself, "But I barely have a handle on everything I already knew was wrong, I don't know how to add these into the mix!" And I won't sugarcoat it ~ So far, my main coping mechanism has been flat out denial: I will deal with it by not dealing with it. That is what I would like to do with each and every illness I happen to have ... I'd like to ignore it until it goes away. Until it decides that I am no longer worth its time, energy, or effort, and just ... leaves. But I also know that there is no way in hell this is going to happen. I mean, it's not like I don't recognize that this isn't a great coping skill; it's just my fallback position.
Still, denial can only last for so long (I hope), and eventually my brain turns back on, and I realize I have to do something. I'd say I'm currently smack dab in the middle of this second phase of coming to terms with the newest issues that have been heaped onto my plate: Full out educational immersion.
Deep down, I'm a geek, a scholar, a nerd. I live my life with the firm belief that there's just about nothing that can't be made better by reading about it - even when I'm upset, I'm curled up with a book, trying to connect to something that will make me feel better. (The way I knew, all those years ago, that my depression wasn't just run of the mill sad/a tiny bit of malaise? Was that I stopped being able to enjoy words - reading them, writing them, interacting with them... it was all suddenly bland and useless, and that's when I knew something was dreadfully wrong.) So, faced with new challenges that I have no idea how I'm going to meet, I head to books, I head to the computer, I head to the library, and I start stuffing as many facts and theories and strategies into my brain as is humanly possible, in the hopes that something will make this easier.
So far, I've done a done of reading up on diabetic food choices (not diets, because I am not good with diets, but choosing foods that will work better with my body's new issues), which is good, because the nutritionist they sent me to explained things like "you have to eat some vegetables every day" and "the way to figure out how many calories are in what you are eating is to read it right here on the box, let me show it to you", and was utterly useless in every single way. I've researched what my blood glucose numbers might mean - again, thanks for all your not help, Nutrition Lady - and why the Hemoglobin A1c test that I took could have such varied results, and how I'm probably not diabetic, but I should try to address things before I become diabetic.
I've looked up the gall-bladder (anatomy - who remembers where all those stupid organs are hiding?), and tried to make sense of the internet's explanations of how something that lives under your ribcage, down by your belly button (ish) can cause pain up behind your shoulder blade, because that is some real ridiculousness right there, human body, and it must be explained. I've tried to figure out how to peacefully combine the gall-bladder attack prevention diet and the pre-diabetic food choices into a livable mealtime strategy. (Have not succeeded, by the way, but am working on it.) I've gone back to some of my favorite chronic illness blogs and looked for relatable, motivational & understanding words; Have reread a couple of books I find inspiring, in the hopes of prodding myself into taking next steps.
I'm accumulating wisdom by the bucketloads, so that the next time I go to the doctor, I won't be so blindsided by what they're saying, and will hopefully be able to ask relevant questions and actually make progress on things.
It's not the final thing I have to do to make things run more smoothly again - at some point all of that theory and supposition will have to turn into action, and I am sort of dreading that step already - but it's still vital. It's the 'getting my feet back under me' portion of adapting to change. The process I have to go through to go from "Hell's no: this is not happening again!" to "Ok: it's happening, let's deal... I know I can pull this off!"
Yes, I'm disappointed to find myself, 17 years later, under continued attack from so many various parts of my body. Yes, I'm frustrated as hell that, instead of improving, things just seem to keep getting worse and worse, and that I still haven't gotten to the root of these illnesses, or figured out a way to get rid of them, or how to achieve all the things I want to achieve in my life. It's beyond frustrating, so much so that when I went to the thesaurus just now to look up a stronger word, one that fit better, I couldn't find one. It's all of them - upsetting, disheartening, prohibitive, discouraging, defeating, baffling, hindering, depleting - every synonym, all combined together and multiplied a few thousand times. All of those words to the nth degree.
But, when I find myself here, at a place that is both familiar and shockingly not, faced with new diagnoses all over again, at least this time I've got some idea of how to get further along down the line: Stuff brain with as much as it can handle, take breaks in denial land as needed, and know that you can handle it, whatever comes.
Monday, January 17, 2011
It’s your own sweet self with whom you must rendezvous.*
I spent a lot of time yesterday making lists. Making lists is one of my specialties; I can make a list for any occasion, discussion, event or job - and often do. Yesterday's lists wound up being twelve pages worth of flowcharts and sub-sections, due dates and color-coded keys.
The reason I started making the lists was that I was feeling completely overwhelmed: No matter what I went to do - everything from putting my clothes away to finishing up scrapbook pages had an additional twelve steps that needed to get done before I could even attempt it. Something as seemingly simple as sewing a button onto my winter coat began an unending domino effect of "find the damn needles and thread -> which are still in a box in the cellar somewhere -> I have to get down cellar to go through the boxes till I can find it, but there's snow outside and I have to go outside to get down cellar, which means I can't get downstairs -> so instead just ask someone else to look for the boxes -> but everyone else is doing their own thing already, so now I have to wait for them to have time -> now they are in the cellar, but they can't find the sewing box with the black thread, will pink work -> decide whether or not pink will work on my black wool coat -> Figure that it's not worth it, and continue to go around with an unbuttonable coat in freezing temperatures."
It was all kinds of ridiculous.
So I sat down and started making very detailed lists of all the things that need to happen, according to my full-to-the-brim brain box, relatively soon. Some of the goals were pretty simple, like Stitch the Names on the Christmas Stockings which I have been promising to do for the past three years, but forget as soon as the stockings get packed away with all the other Christmas stuff. This year, I put them in my craft pile, AND they are on my list, so they at least have a shot at getting done. Other simpler tasks include the aforementioned Button Sewing, Putting Pictures on a Camera Card for my mom's digital frame, Hanging up my 2011 Calendar (only 18 days or so late!), and finally get somebody to help me Arrange the Top Shelves of the Bookcases in the Library.
Other goals were more abstract like Have a Comfortable, Usable Bedroom and Be a Better Friend/Family Member, which includes steps like "setting a reminder to make weekly phone calls to people" (because I hate making phone calls, but don't mind it once I'm on the actual phone), and "finally respond to e-mails from three weeks ago". And still other goals are 1000 stepped behemoths that begin with things like "set aside a few hours a week" and end, forty-five arrow lengths later at An Uncluttered and Sensibly Organized Storage Area In The Cellar or Finally Stop Living Out of Boxes .
There are goals that I have to physically do (Call and Make Appointments with Lynne, Zack, and Neurologist ) and goals that rely more on me finally making decisions ( Start Taking New Prescriptions or Call and Say You Don't Want To ). There are goals that have a lot of steps missing, because I am not sure of how to fill them in, most importantly Feel Better and Have Less Pain, but even with out all the intermediate steps, I have starting points for most of these things, something to do or decide or think about that will help me make the next steps.
I didn't realize until I was about 3/4 (and 3 hours) into the process that some of these goals seemed an awful lot like what could be considered New Years Resolutions, even though that certainly was not my goal. Maybe it was the time of year that had so much busyness buzzing around in my brain, but I just needed to get some of it down on paper, get some of it in a place where I could say "Ok, I know that needs to get done, so now I can stop worrying about forgetting it, or never getting to it: It's there, and I'll get to it when I can, one step at a time." And as I was writing the list, and breaking these huge all-encompassing objectives down into their smallest pieces, it made me realize that there were things that I could actually be doing to help me achieve these things. I wouldn't say it made everything less overwhelming (because, hello: please see 12 pages of color-coded lists ), but it certainly made a lot of the stuff seem more doable.
I can't Get all of Last Year's Pictures into Photo Albums today, but I can "label and date a few packages", or "figure out where the extra albums are living". I'm not going to immediately Make Money Selling Extra Stuff , but I can constantly be "weeding out boxes into four piles: Keep Trash Donate and Sell" as I go through them.
And yes, this is not a revolutionary new system of achieving goals that I have created (because if it was, I would please to like my genius check now, thank you), but the same advice those "experts" on tv or in magazines have been giving since they became experts - Break things into managable chunks, or you won't bother doing them. It supposedly works for losing weight, for being organized, for "living the life you deserve," for whatever. I don't know how well it will work for me, in the long run, because I just made my damn lists yesterday, but I will say that it's helped me to think about where I want to wind up, and what kinds of things I can do NOW to help me get there, eventually, someday.
And if there were more blank spaces on the charts then I would have liked (for example, between "talk to Zack" and "start taking wonder drug that fixes everything"), then those are just a part of life - and especially a part of living with chronic illnesses - and I can deal with them when I get there. It's the knowing that I'm in charge of something even if it is as small as "write records request form for Specialist X", that gives me hope, and a sense of control. I might not have any choices about some of the things I have to deal with (hello: Hives; Parents who drink to excess; Living in a house with stairs), but there are still some choices that are only mine to make, and that feels - if totally overwhelming - still pretty damn good.
*Last week's Dear Sugar column
The reason I started making the lists was that I was feeling completely overwhelmed: No matter what I went to do - everything from putting my clothes away to finishing up scrapbook pages had an additional twelve steps that needed to get done before I could even attempt it. Something as seemingly simple as sewing a button onto my winter coat began an unending domino effect of "find the damn needles and thread -> which are still in a box in the cellar somewhere -> I have to get down cellar to go through the boxes till I can find it, but there's snow outside and I have to go outside to get down cellar, which means I can't get downstairs -> so instead just ask someone else to look for the boxes -> but everyone else is doing their own thing already, so now I have to wait for them to have time -> now they are in the cellar, but they can't find the sewing box with the black thread, will pink work -> decide whether or not pink will work on my black wool coat -> Figure that it's not worth it, and continue to go around with an unbuttonable coat in freezing temperatures."
It was all kinds of ridiculous.
So I sat down and started making very detailed lists of all the things that need to happen, according to my full-to-the-brim brain box, relatively soon. Some of the goals were pretty simple, like Stitch the Names on the Christmas Stockings which I have been promising to do for the past three years, but forget as soon as the stockings get packed away with all the other Christmas stuff. This year, I put them in my craft pile, AND they are on my list, so they at least have a shot at getting done. Other simpler tasks include the aforementioned Button Sewing, Putting Pictures on a Camera Card for my mom's digital frame, Hanging up my 2011 Calendar (only 18 days or so late!), and finally get somebody to help me Arrange the Top Shelves of the Bookcases in the Library.
Other goals were more abstract like Have a Comfortable, Usable Bedroom and Be a Better Friend/Family Member, which includes steps like "setting a reminder to make weekly phone calls to people" (because I hate making phone calls, but don't mind it once I'm on the actual phone), and "finally respond to e-mails from three weeks ago". And still other goals are 1000 stepped behemoths that begin with things like "set aside a few hours a week" and end, forty-five arrow lengths later at An Uncluttered and Sensibly Organized Storage Area In The Cellar or Finally Stop Living Out of Boxes .
There are goals that I have to physically do (Call and Make Appointments with Lynne, Zack, and Neurologist ) and goals that rely more on me finally making decisions ( Start Taking New Prescriptions or Call and Say You Don't Want To ). There are goals that have a lot of steps missing, because I am not sure of how to fill them in, most importantly Feel Better and Have Less Pain, but even with out all the intermediate steps, I have starting points for most of these things, something to do or decide or think about that will help me make the next steps.
I didn't realize until I was about 3/4 (and 3 hours) into the process that some of these goals seemed an awful lot like what could be considered New Years Resolutions, even though that certainly was not my goal. Maybe it was the time of year that had so much busyness buzzing around in my brain, but I just needed to get some of it down on paper, get some of it in a place where I could say "Ok, I know that needs to get done, so now I can stop worrying about forgetting it, or never getting to it: It's there, and I'll get to it when I can, one step at a time." And as I was writing the list, and breaking these huge all-encompassing objectives down into their smallest pieces, it made me realize that there were things that I could actually be doing to help me achieve these things. I wouldn't say it made everything less overwhelming (because, hello: please see 12 pages of color-coded lists ), but it certainly made a lot of the stuff seem more doable.
I can't Get all of Last Year's Pictures into Photo Albums today, but I can "label and date a few packages", or "figure out where the extra albums are living". I'm not going to immediately Make Money Selling Extra Stuff , but I can constantly be "weeding out boxes into four piles: Keep Trash Donate and Sell" as I go through them.
And yes, this is not a revolutionary new system of achieving goals that I have created (because if it was, I would please to like my genius check now, thank you), but the same advice those "experts" on tv or in magazines have been giving since they became experts - Break things into managable chunks, or you won't bother doing them. It supposedly works for losing weight, for being organized, for "living the life you deserve," for whatever. I don't know how well it will work for me, in the long run, because I just made my damn lists yesterday, but I will say that it's helped me to think about where I want to wind up, and what kinds of things I can do NOW to help me get there, eventually, someday.
And if there were more blank spaces on the charts then I would have liked (for example, between "talk to Zack" and "start taking wonder drug that fixes everything"), then those are just a part of life - and especially a part of living with chronic illnesses - and I can deal with them when I get there. It's the knowing that I'm in charge of something even if it is as small as "write records request form for Specialist X", that gives me hope, and a sense of control. I might not have any choices about some of the things I have to deal with (hello: Hives; Parents who drink to excess; Living in a house with stairs), but there are still some choices that are only mine to make, and that feels - if totally overwhelming - still pretty damn good.
*Last week's Dear Sugar column
Wednesday, January 12, 2011
Anger.
It's a simple word, but a complex emotion. Something familiar to everybody, but still absolutely unique to each individual. And, I realized quite recently, that it is the main obstacle I've been facing (for the last however long) when it comes to writing anything of substance in this space.
Sure, there's been the holiday havoc, and the shingles before that, and the family members' health crises and the three months away from my own home before that, and about a million other, tiny in comparison, issues that keep cropping up, but I've written through that kind of stuff before - I even sort of wrote through it this time. But more often then not, five years, and a gazillion stories and shared emotions into this blogging thing, lately every time I opened the little Blogger tab on my computer, I would find myself struck - and stuck - with all the things I couldn't say.
All the things I have been so angry about that I can't talk about in person - either because I can't figure out how to say them or because nobody actually hears them no matter how loudly I say it - just sort of clumped up in my brain, letting little drips and drops through here and there, but bottling up most of what could actually be said. And the thing about it was, that I didn't even realize it was anger that was keeping the words from coming until I started to let some of it out. I knew there was something: a wall, a block, a barrier between me and the world - even here in this virtual world - but I couldn't figure out where the wall had come from, or how to take it down.
And I still haven't figured it all out, but over the past few weeks something has been made abundantly clear to me (and probably to those people in my life who are paying any attention at all): I am pissed off.
I am pissed off about so many little things, and so many huge things, and just So. Many. Things. And it has shut me down.
It has turned off the flow of words from my brain to my fingers, so that when I come here to write something, all I can think to say is "Things here are busy/crazy/overwhelming, check back later." But I'm not satisfied with that, so I wind up writing nothing and hoping that you all haven't wandered away due to my inattention.
It's shut down my patience, which I'm supposed to have an unending supply of, because that's what people expect of me - To the extent that on Christmas Day I had to lock myself in my room and cry for ten minutes before I could come out and face people again because they were getting on my nerves so much. And the things they were doing would not ordinarily bother me that much, so I know it wasn't just that they were being assholes (even though they kind of were).
It's shut down my ability to put up with crap: I feel unable to take people's shit anymore, and want them to know and to see it as truth that I Am Done. Even the kids are getting a whole lot more of "does this look like my serious face or my joking face? Because I am not joking and you're going to want to stop it right now." I feel like all of my boundaries have been trampled over and over again so I'm left, walking the lines, retrenching, protecting myself - even if that means being overly sensitive and shooting anyone who comes within sight, deservedly or not.
It's closed of my sense of empathy and sympathy - particularly with myself: I am so upset with myself for being upset that I go around feeling like a heartless bitch and expecting people to treat me as if I am that. (Even though I know I'm not.)
It has also shut down my ability to express emotions with any clarity, in case you couldn't tell from that last paragraph. I keep thinking things like "I'm sad; but why?" or "I am feeling such rage right now, and it is out of proportion to the situation we are in, but I can't tell you why I'm feeling it." And it pisses me off even more when someone says something about it ("You seem tired/upset/not your usual cheery self." No, really: gee thanks.)
'So,' you might ask, if you have made it this far into this unending rant about... everything, 'NTE, why are you so angry?' And that's just the thing - I'm angry about so many things, only a quarter of which I can put an actual label on.
I'm angry with passive-aggressive commentary from my family, the kind that I'm just supposed to shrug off and pretend doesn't hurt me, and I'm angry with myself for making those same kind of remarks to them. I'm angry with my illnesses and doctors and the frustrating lack of ANYTHING that I've been confronted with, yet again, this winter. I'm angry with the ableist/racist/sexist/---ist discussions that take place around me, and that I'm not supposed to get angry at them, because that makes me "holier-than-thou." I'm angry at what a shit year 2010 turned out to be, and all the ridiculous drama that 2011 is already holding for us. I'm angry that I'm not doing more about all the things I know only I can take care of, and I'm angry at people who aren't taking the actions only they can do to fix things. I'm angry that there are situations I can't control, and yet I spend all my time trying to control them. I'm angry about things that shouldn't even enter into my life, on other people's behalf. I'm angry that no one seems to notice I am angry. I'm angry about the fact that nobody else is as angry as (I feel) they should be.
I'm angry with myself, with my body, with my family, with my doctors, with the Internet, with the world. I'm angry at my thoughts and feelings, and the fact that they buzz around in my head and heart and stomach incessantly, but when I try to get them down on paper, they become harder to grasp then vapor.
I'm just angry. Mad, frustrated, ranting, coiled, incensed, enraged, inflamed. All of those. And it's painful to be this angry, and to be keeping it all inside.
So when I finally (and I do mean FINALLY, because I have been feeling this way since, at least September, when my Grandmother had her stroke & I wound up semi-homeless again & my doctor told me that my shingles were stress-related hives instead of Listening To Me)... When I finally realized that this emotion that was bottling everything else up, that was clouding all my other emotions and dulling them to the point where I wasn't even feeling them sometimes, was anger, I decided to let it fly. I'm not keeping it to myself anymore. I'm trying not to aim it indiscriminately or disproportionately, but I'm not keeping it all bound up inside of me anymore.
Which may or may not bode entirely well for this blog and what it might become over the next little while, but I'll tell you one thing it definitely will be -
More honest.
Because part of the reason I haven't been writing all that much is because who wants to hear the ranting of an angry woman, especially if she doesn't even know what she's angry about? Would I keep reading a blog like that? I don't know for sure, and I can't answer it for you either. But I think I would, because it's true. And that's all I ever require in whatever I'm reading... that it come from a true place. And that's all I should require from what I'm writing too.
So if mad is what I'm feeling, mad may be what you get. But at least it'll still be the truth.
Welcome to 2011, everybody, let's hope it gets better from here, and if it doesn't, come join me in being righteously angry... because the only way through it is through it.*
*I can't remember which AA or Al-anon or substance abuse program pamphlet I got that from, and a Google search only shows up random religious theologies, which I know is not where I got it, but it still applies. Or, if you prefer: "If you're going through hell, keep going." Winston Churchill
Sure, there's been the holiday havoc, and the shingles before that, and the family members' health crises and the three months away from my own home before that, and about a million other, tiny in comparison, issues that keep cropping up, but I've written through that kind of stuff before - I even sort of wrote through it this time. But more often then not, five years, and a gazillion stories and shared emotions into this blogging thing, lately every time I opened the little Blogger tab on my computer, I would find myself struck - and stuck - with all the things I couldn't say.
All the things I have been so angry about that I can't talk about in person - either because I can't figure out how to say them or because nobody actually hears them no matter how loudly I say it - just sort of clumped up in my brain, letting little drips and drops through here and there, but bottling up most of what could actually be said. And the thing about it was, that I didn't even realize it was anger that was keeping the words from coming until I started to let some of it out. I knew there was something: a wall, a block, a barrier between me and the world - even here in this virtual world - but I couldn't figure out where the wall had come from, or how to take it down.
And I still haven't figured it all out, but over the past few weeks something has been made abundantly clear to me (and probably to those people in my life who are paying any attention at all): I am pissed off.
I am pissed off about so many little things, and so many huge things, and just So. Many. Things. And it has shut me down.
It has turned off the flow of words from my brain to my fingers, so that when I come here to write something, all I can think to say is "Things here are busy/crazy/overwhelming, check back later." But I'm not satisfied with that, so I wind up writing nothing and hoping that you all haven't wandered away due to my inattention.
It's shut down my patience, which I'm supposed to have an unending supply of, because that's what people expect of me - To the extent that on Christmas Day I had to lock myself in my room and cry for ten minutes before I could come out and face people again because they were getting on my nerves so much. And the things they were doing would not ordinarily bother me that much, so I know it wasn't just that they were being assholes (even though they kind of were).
It's shut down my ability to put up with crap: I feel unable to take people's shit anymore, and want them to know and to see it as truth that I Am Done. Even the kids are getting a whole lot more of "does this look like my serious face or my joking face? Because I am not joking and you're going to want to stop it right now." I feel like all of my boundaries have been trampled over and over again so I'm left, walking the lines, retrenching, protecting myself - even if that means being overly sensitive and shooting anyone who comes within sight, deservedly or not.
It's closed of my sense of empathy and sympathy - particularly with myself: I am so upset with myself for being upset that I go around feeling like a heartless bitch and expecting people to treat me as if I am that. (Even though I know I'm not.)
It has also shut down my ability to express emotions with any clarity, in case you couldn't tell from that last paragraph. I keep thinking things like "I'm sad; but why?" or "I am feeling such rage right now, and it is out of proportion to the situation we are in, but I can't tell you why I'm feeling it." And it pisses me off even more when someone says something about it ("You seem tired/upset/not your usual cheery self." No, really: gee thanks.)
'So,' you might ask, if you have made it this far into this unending rant about... everything, 'NTE, why are you so angry?' And that's just the thing - I'm angry about so many things, only a quarter of which I can put an actual label on.
I'm angry with passive-aggressive commentary from my family, the kind that I'm just supposed to shrug off and pretend doesn't hurt me, and I'm angry with myself for making those same kind of remarks to them. I'm angry with my illnesses and doctors and the frustrating lack of ANYTHING that I've been confronted with, yet again, this winter. I'm angry with the ableist/racist/sexist/---ist discussions that take place around me, and that I'm not supposed to get angry at them, because that makes me "holier-than-thou." I'm angry at what a shit year 2010 turned out to be, and all the ridiculous drama that 2011 is already holding for us. I'm angry that I'm not doing more about all the things I know only I can take care of, and I'm angry at people who aren't taking the actions only they can do to fix things. I'm angry that there are situations I can't control, and yet I spend all my time trying to control them. I'm angry about things that shouldn't even enter into my life, on other people's behalf. I'm angry that no one seems to notice I am angry. I'm angry about the fact that nobody else is as angry as (I feel) they should be.
I'm angry with myself, with my body, with my family, with my doctors, with the Internet, with the world. I'm angry at my thoughts and feelings, and the fact that they buzz around in my head and heart and stomach incessantly, but when I try to get them down on paper, they become harder to grasp then vapor.
I'm just angry. Mad, frustrated, ranting, coiled, incensed, enraged, inflamed. All of those. And it's painful to be this angry, and to be keeping it all inside.
So when I finally (and I do mean FINALLY, because I have been feeling this way since, at least September, when my Grandmother had her stroke & I wound up semi-homeless again & my doctor told me that my shingles were stress-related hives instead of Listening To Me)... When I finally realized that this emotion that was bottling everything else up, that was clouding all my other emotions and dulling them to the point where I wasn't even feeling them sometimes, was anger, I decided to let it fly. I'm not keeping it to myself anymore. I'm trying not to aim it indiscriminately or disproportionately, but I'm not keeping it all bound up inside of me anymore.
Which may or may not bode entirely well for this blog and what it might become over the next little while, but I'll tell you one thing it definitely will be -
More honest.
Because part of the reason I haven't been writing all that much is because who wants to hear the ranting of an angry woman, especially if she doesn't even know what she's angry about? Would I keep reading a blog like that? I don't know for sure, and I can't answer it for you either. But I think I would, because it's true. And that's all I ever require in whatever I'm reading... that it come from a true place. And that's all I should require from what I'm writing too.
So if mad is what I'm feeling, mad may be what you get. But at least it'll still be the truth.
Welcome to 2011, everybody, let's hope it gets better from here, and if it doesn't, come join me in being righteously angry... because the only way through it is through it.*
*I can't remember which AA or Al-anon or substance abuse program pamphlet I got that from, and a Google search only shows up random religious theologies, which I know is not where I got it, but it still applies. Or, if you prefer: "If you're going through hell, keep going." Winston Churchill
Friday, November 19, 2010
"Let the world know you as you are, not as you think you should be, because sooner or later, if you are posing, you will forget the pose, and then...
... where are you?" ~Fanny Brice
Day 22: Something you wish you hadn't done in your life
I don't know if it's just a local thing, but here in the Boston area, we have a store called Filene's, which gave birth to a bargain version of the store, Filene's Basement. (Or we used to - it's since gone into bankruptcy and they closed a ton of the stores.) I think most people (around here, anyways) know it best because of their annual Running of the Brides extravaganza, where hundreds of designer gowns are sold at deep discounts for one day only, causing local brides to sleep outside and stampede into the stores. Back when I was in high school, they also had a much less advertised, one day only sale on prom gowns, where every gown was $50-90. (Which, even 10+ years ago, was pretty cheap for a prom dress around here.)
The first year I was old enough to go to a prom was sophomore year, when we had a semi-formal. My mom had been searching the newspaper for the advertisement, finally saw that it was scheduled for the next Saturday, and woke up ridiculously early to drive me and my best friend Ann-Marie the 25 or so minutes away to our nearest store. There were a few mothers and daughters sitting in cars waiting, like us, but the line wasn't horrible, and there was no stampede. We both managed to find fabulous dresses in a relatively short amount of time, and then my mom took us out for breakfast.
Junior year, I never made it to the dress-buying stage, because I got really sick right before prom, and wasn't able to go. (Although I did have a date, with a boy who turned into a real prick when I told him I couldn't go, but whatever - I stayed home with pneumonia, watching a Star Wars (pre-prequel) marathon instead, and I see on Facebook that that boy has since had some "legal" troubles.)
By the time my Senior prom rolled around, I was determined to go: I had already missed out on a lot of "normal" high school experiences because of my illness, and I really was set on going. I was partially home tutored and so was absent from most of the social aspects of school, like lunches and clubs and such, and I saw the prom as really my last shot at being a normal teenager.
I was going to go by myself, like I'd done as a sophomore, but one of my girlfriends started talking to a mutual guy friend of ours and she decided that we would go together. Since I'd literally gone to school with him since Kindergarten, and he knew I wouldn't really be able to dance or anything, we were fine to go together as friends.
When the day of the sale came, I managed to find two dresses that I loved: a black and pink Audrey Hepburn-ish number, with a high collar and a ballgown's bottom and a sweetheart necked, all black dress with a little rhinestone bling right on the front. We wound up taking them both home, even though, at nearly $100, I knew I'd have to return one of them. I tried those two dresses on, almost daily, for weeks, trying to decide. They hung on the back of my door and I would try to picture myself at the prom, wearing one or the other of them, trying to figure out which I should keep.
The all black dress was great: I felt fancy and skinny and gorgeous in it.
But the pink and black? I loved it. I loved it because it was different, because it felt elegant and classy and classic. Because it was totally unlike anything I'd ever seen before, and definitely unlike anything I'd ever worn before.
You have to keep in mind that I barely ever worn anything other than sweats or jeans to school. I didn't wear make up or have the energy to do my hair for 45 minutes like all of the rest of the girls - the little umph that I had had to last me through the two required classes I had left to take, and then I would come home and collapse in bed. I was never fancy or fashionable, and it seemed to me - even now, but especially then - that in one of the many classes I was missing, they must have been teaching all those girls how to do their hair and makeup or how to put outfits and shoes and whatever together, because I never picked up those skills. Those are things that I am - to my younger sisters' dismay - horrible at. I wore what was easy, what was comfortable, and never understood fashion or how it was supposed to relate to me.
Before I got sick, I was pretty bad at it, but at least I tried. Afterwards? I was lucky to get to school at all, and if that meant I had to go in the same shirt I'd worn the day before, well then that's what it meant. (Thankfully, at my (all girls) college, this - or, even better, pajamas - would be the norm, rather than the exception, but I didn't know that then.)
So I kept trying the dresses on, kept marvelling at the fact that I was actually, kind of/sort of ... almost beautiful when I was dressed like this. I'd stopped feeling pretty when I'd stopped being able to dance. I hated my body and the way it wouldn't do what I wanted it to do, and I hated the 10-15 extra pounds I'd put on since I stopped being able to move freely. I just... was so unhappy. But then I actually thought I looked GOOD in those dresses, I actually thought I was pretty.
- And it hurts me that I am still so negative about my body, and that I hate it for all the things it can't do instead of loving it for what it does. It's better now then it was then, but God, 16 years later, you'd think I'd have made more progress on accepting that this is the way I am! -
But I also didn't have enough confidence in the way I felt to make the bolder choice - in the end, the pink and black dress went back to the store, because I didn't feel like a good judge of what would fit in with everybody else, and I absolutely did NOT want to stick out anymore than I already did ("You know, the girl who falls down a lot? She wore the oddest dress to the prom....") and so I went with the safe dress, the safe choice. And I looked fabulous in that dress, don't get me wrong - I was skinny and beautiful and elegant, and I had a great time with my friends, even though I did eat a box and a half of caffeine pills just to stay awake, and it was a fabulous night, that I don't regret at all.
But now, sometimes, when I have to decide something that I don't really feel all that confident about, I wonder: am I choosing the black dress, or the Audrey Hepburn dress? Am I passing on my (probably only) chance to feel like an elegant icon, because it might make me different, might make me stand out? As somebody who hates standing out, it's hard to choose the pink and black, hard to pick the thing that'll get me noticed.
But it might just be worth it, too.
And that's something I wish I had done then. And I hope I'd do it differently if I had the chance again.
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Day 01 Something you hate about yourself.
Day 02 Something you love about yourself.
Day 03 Something you have to forgive yourself for.
Day 04 Something you have to forgive someone for.
Day 05 Something you hope to do in your life.
Day 06 Something you hope you never have to do.
Day 07 Someone who has made your life worth living for.
Day 08 Someone who made your life hell, or treated you like shit.
Day 09 Someone you didn’t want to let go, but just drifted.
Day 10 Someone you need to let go, or wish you didn’t know.
Day 11 Something people seem to compliment you the most on.
Day 12 Something you never get compliments on.
Day 13 A band or artist that has gotten you through some tough ass days. (write a letter.)
Day 14 A hero that has let you down. (letter)
Day 15 Something or someone you couldn’t live without, because you’ve tried living without it.
Day 16 Someone or something you definitely could live without.
Day 17 A book you’ve read that changed your views on something.
Day 18 Your views on gay marriage.
Day 19 What do you think of religion? Or what do you think of politics?
Day 20 Your views on drugs and alcohol.
Day 21 (scenario) Your best friend is in a car accident and you two got into a fight an hour before. What do you do?
Day 22 Something you wish you hadn’t done in your life.
Day 23 Something you wish you had done in your life.
Day 24 Make a playlist to someone, and explain why you chose all the songs. (Just post the titles and artists and letter)
Day 25 The reason you believe you’re still alive today.
Day 26 Have you ever thought about giving up on life? If so, when and why?
Day 27 What’s the best thing going for you right now?
Day 28 What if you were pregnant or got someone pregnant, what would you do?
Day 29 Something you hope to change about yourself. And why.
Day 30 A letter to yourself, tell yourself EVERYTHING you love about yourself
Day 22: Something you wish you hadn't done in your life
I don't know if it's just a local thing, but here in the Boston area, we have a store called Filene's, which gave birth to a bargain version of the store, Filene's Basement. (Or we used to - it's since gone into bankruptcy and they closed a ton of the stores.) I think most people (around here, anyways) know it best because of their annual Running of the Brides extravaganza, where hundreds of designer gowns are sold at deep discounts for one day only, causing local brides to sleep outside and stampede into the stores. Back when I was in high school, they also had a much less advertised, one day only sale on prom gowns, where every gown was $50-90. (Which, even 10+ years ago, was pretty cheap for a prom dress around here.)
The first year I was old enough to go to a prom was sophomore year, when we had a semi-formal. My mom had been searching the newspaper for the advertisement, finally saw that it was scheduled for the next Saturday, and woke up ridiculously early to drive me and my best friend Ann-Marie the 25 or so minutes away to our nearest store. There were a few mothers and daughters sitting in cars waiting, like us, but the line wasn't horrible, and there was no stampede. We both managed to find fabulous dresses in a relatively short amount of time, and then my mom took us out for breakfast.
Junior year, I never made it to the dress-buying stage, because I got really sick right before prom, and wasn't able to go. (Although I did have a date, with a boy who turned into a real prick when I told him I couldn't go, but whatever - I stayed home with pneumonia, watching a Star Wars (pre-prequel) marathon instead, and I see on Facebook that that boy has since had some "legal" troubles.)
By the time my Senior prom rolled around, I was determined to go: I had already missed out on a lot of "normal" high school experiences because of my illness, and I really was set on going. I was partially home tutored and so was absent from most of the social aspects of school, like lunches and clubs and such, and I saw the prom as really my last shot at being a normal teenager.
I was going to go by myself, like I'd done as a sophomore, but one of my girlfriends started talking to a mutual guy friend of ours and she decided that we would go together. Since I'd literally gone to school with him since Kindergarten, and he knew I wouldn't really be able to dance or anything, we were fine to go together as friends.
When the day of the sale came, I managed to find two dresses that I loved: a black and pink Audrey Hepburn-ish number, with a high collar and a ballgown's bottom and a sweetheart necked, all black dress with a little rhinestone bling right on the front. We wound up taking them both home, even though, at nearly $100, I knew I'd have to return one of them. I tried those two dresses on, almost daily, for weeks, trying to decide. They hung on the back of my door and I would try to picture myself at the prom, wearing one or the other of them, trying to figure out which I should keep.
The all black dress was great: I felt fancy and skinny and gorgeous in it.
But the pink and black? I loved it. I loved it because it was different, because it felt elegant and classy and classic. Because it was totally unlike anything I'd ever seen before, and definitely unlike anything I'd ever worn before.
You have to keep in mind that I barely ever worn anything other than sweats or jeans to school. I didn't wear make up or have the energy to do my hair for 45 minutes like all of the rest of the girls - the little umph that I had had to last me through the two required classes I had left to take, and then I would come home and collapse in bed. I was never fancy or fashionable, and it seemed to me - even now, but especially then - that in one of the many classes I was missing, they must have been teaching all those girls how to do their hair and makeup or how to put outfits and shoes and whatever together, because I never picked up those skills. Those are things that I am - to my younger sisters' dismay - horrible at. I wore what was easy, what was comfortable, and never understood fashion or how it was supposed to relate to me.
Before I got sick, I was pretty bad at it, but at least I tried. Afterwards? I was lucky to get to school at all, and if that meant I had to go in the same shirt I'd worn the day before, well then that's what it meant. (Thankfully, at my (all girls) college, this - or, even better, pajamas - would be the norm, rather than the exception, but I didn't know that then.)
So I kept trying the dresses on, kept marvelling at the fact that I was actually, kind of/sort of ... almost beautiful when I was dressed like this. I'd stopped feeling pretty when I'd stopped being able to dance. I hated my body and the way it wouldn't do what I wanted it to do, and I hated the 10-15 extra pounds I'd put on since I stopped being able to move freely. I just... was so unhappy. But then I actually thought I looked GOOD in those dresses, I actually thought I was pretty.
- And it hurts me that I am still so negative about my body, and that I hate it for all the things it can't do instead of loving it for what it does. It's better now then it was then, but God, 16 years later, you'd think I'd have made more progress on accepting that this is the way I am! -
But I also didn't have enough confidence in the way I felt to make the bolder choice - in the end, the pink and black dress went back to the store, because I didn't feel like a good judge of what would fit in with everybody else, and I absolutely did NOT want to stick out anymore than I already did ("You know, the girl who falls down a lot? She wore the oddest dress to the prom....") and so I went with the safe dress, the safe choice. And I looked fabulous in that dress, don't get me wrong - I was skinny and beautiful and elegant, and I had a great time with my friends, even though I did eat a box and a half of caffeine pills just to stay awake, and it was a fabulous night, that I don't regret at all.
But now, sometimes, when I have to decide something that I don't really feel all that confident about, I wonder: am I choosing the black dress, or the Audrey Hepburn dress? Am I passing on my (probably only) chance to feel like an elegant icon, because it might make me different, might make me stand out? As somebody who hates standing out, it's hard to choose the pink and black, hard to pick the thing that'll get me noticed.
But it might just be worth it, too.
And that's something I wish I had done then. And I hope I'd do it differently if I had the chance again.
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Day 01 Something you hate about yourself.
Day 02 Something you love about yourself.
Day 03 Something you have to forgive yourself for.
Day 04 Something you have to forgive someone for.
Day 05 Something you hope to do in your life.
Day 06 Something you hope you never have to do.
Day 07 Someone who has made your life worth living for.
Day 08 Someone who made your life hell, or treated you like shit.
Day 09 Someone you didn’t want to let go, but just drifted.
Day 10 Someone you need to let go, or wish you didn’t know.
Day 11 Something people seem to compliment you the most on.
Day 12 Something you never get compliments on.
Day 13 A band or artist that has gotten you through some tough ass days. (write a letter.)
Day 14 A hero that has let you down. (letter)
Day 15 Something or someone you couldn’t live without, because you’ve tried living without it.
Day 16 Someone or something you definitely could live without.
Day 17 A book you’ve read that changed your views on something.
Day 18 Your views on gay marriage.
Day 19 What do you think of religion? Or what do you think of politics?
Day 20 Your views on drugs and alcohol.
Day 21 (scenario) Your best friend is in a car accident and you two got into a fight an hour before. What do you do?
Day 22 Something you wish you hadn’t done in your life.
Day 23 Something you wish you had done in your life.
Day 24 Make a playlist to someone, and explain why you chose all the songs. (Just post the titles and artists and letter)
Day 25 The reason you believe you’re still alive today.
Day 26 Have you ever thought about giving up on life? If so, when and why?
Day 27 What’s the best thing going for you right now?
Day 28 What if you were pregnant or got someone pregnant, what would you do?
Day 29 Something you hope to change about yourself. And why.
Day 30 A letter to yourself, tell yourself EVERYTHING you love about yourself
Monday, November 01, 2010
30 Days of Truth, Day 01
So here's my first official 30 Days of Truth post, which I found via more than one blog, but I'll search my Google Reader and post a few links, if you'd like. I'm sure you've seen them around, and some of the more stellar responses have gotten me to start thinking on the topics as well, so I figured - good topics? check; guaranteed NaBloPoMo posts everyday? Check; Deep thoughts? Also check. So here we are.
Day 01: Something you hate about yourself
Ugh. I feel like this list could go on forever and ever, and I hate that, for sure: that I'm not more happy with who I am or how I look or more comfortable in my own skin. Whenever I'm reading a book and a character is described just that way - "You could tell she was comfortable in her own skin" - I always think "But how? How did she get comfortable just being who she was? How is that even possible?"
I know it must be possible - I think I know enough people that are just who they are and that's that to know it is possible. But it seems like something that's possible for other people . Not for me. Maybe, some day. But if I'm being honest, I don't really think so. I don't really believe that I'll ever just be happy with how I look, or how I act. Or -if not happy, exactly - but happy enough.
Happy enough not to hate that I need to ask for help for things that I "should be" capable of doing. Happy enough not to hate that I can't drive myself (or walk myself) from point A to point B and have to depend on other people all the time. Happy enough to not hate the way I cry when I'm arguing with someone and how weak it makes me feel. Happy enough not to want to burn the piles down around me rather than hate how I procrastinate dealing with them.
Happy enough not to cringe when I see myself in the mirror in the morning. This is a new one for me, mostly because, at my house, what few mirrors we have are all at standing up person's eye level. If I want to look in the mirror, I have to make an extra effort, so I don't often look in the mirror unless there's a reason for it. But here at Grandmother's house there is a huge honking mirror in the little bathroom. I'm talking about an entire wall's worth of vanity mirror, so that if you were standing in the middle of the bathroom floor and stretched your arms out to the side to touch the walls (which you can do because that's exactly how small the bathroom is), you'd be able to see the whole thing in the mirrors. Which also means that you can see yourself from just about anywhere, including sitting down. And this is the only bathroom I have access to, and so, when I roll in there first thing in the morning, I see myself.
And I find that I am often not pleased with how I look. I even thought "holy crap: that's what you look like today. Ew" the other day. "Ew." Was an actual thought I had about myself, and it made me realize how harshly I judge my physical appearance. It's been on my mind ever since.
I knew I had issues with my weight - being on steroids and the Lyrica and god knows how many other drugs has definitely screwed with my poundage - but it usually only bothers me when I have to go shopping for something nice and nothing nice fits over my boobs. Or when I'm in a group picture - particularly one with all my sisters, and I realize I could put three of them together to equal me (almost, anyways). But, for the most part, it doesn't enter my mind - the good thing about having a body where you have to be measuring things against pain or exhaustion or sick levels in matter of importance is that you realize that being heavy does not equal the end of the world. Sure I'm a little bigger than I'd like to be, comfortably, but it doesn't physically hurt, so it moves way down on the list of things that concern me on a day to day basis.
It hardly ever even makes it onto the list, to be honest with you. I'm not generally embarassed by it and see no reason why I, or anyone else, should be - so it worries me that I can think so poorly about my appearance.
And it's not just the weight - it's the stuff I don't have the energy to devote to fixing: I'm lucky if I ran a comb through my hair twice last week (clip it up and be done with it is my usual motto), I don't wear makeup (although I could often use it) or nice clothes (nice and comfortable are apparently fashion's version of oil and water). I look... tired. And worn out.
And - even though I am tired and sore and worn out - I hate that I look that way. And I hate that it matters to me how I look at all, because if you had asked me a month ago, when I wasn't having to face myself in the mirror every day, I would've said it didn't bother me at all. I don't want it to bother me at all.
So I'm trying to look myself in the mirror now and think at least one positive thing, even if it's just "Look, you made it all the way in here, and you didn't think you were going to get this far today, so that's something" or "You have your mother's eyes, you know, so if you can't say those aren't pretty because she has gorgeous eyes. It's ok that they're tired today, they're still her eyes." Or - as was the case one day last week - "We are not leaving this room until you can think of something nice to say to yourself, you stubborn ass. Because if Lil Girl looked at herself in the mirror and thought "ew," even once, your heart would break, and the least you can do is figure out how to make the same be true for yourself."
I hate that I haven't figured it all out yet, I guess is what I'm saying.
Day 01 Something you hate about yourself.
Day 02 Something you love about yourself.
Day 03 Something you have to forgive yourself for.
Day 04 Something you have to forgive someone for.
Day 05 Something you hope to do in your life.
Day 06 Something you hope you never have to do.
Day 07 Someone who has made your life worth living for.
Day 08 Someone who made your life hell, or treated you like shit.
Day 09 Someone you didn’t want to let go, but just drifted.
Day 10 Someone you need to let go, or wish you didn’t know.
Day 11 Something people seem to compliment you the most on.
Day 12 Something you never get compliments on.
Day 13 A band or artist that has gotten you through some tough ass days. (write a letter.)
Day 14 A hero that has let you down. (letter)
Day 15 Something or someone you couldn’t live without, because you’ve tried living without it.
Day 16 Someone or something you definitely could live without.
Day 17 A book you’ve read that changed your views on something.
Day 18 Your views on gay marriage.
Day 19 What do you think of religion? Or what do you think of politics?
Day 20 Your views on drugs and alcohol.
Day 21 (scenario) Your best friend is in a car accident and you two got into a fight an hour before. What do you do?
Day 22 Something you wish you hadn’t done in your life.
Day 23 Something you wish you had done in your life.
Day 24 Make a playlist to someone, and explain why you chose all the songs. (Just post the titles and artists and letter)
Day 25 The reason you believe you’re still alive today.
Day 26 Have you ever thought about giving up on life? If so, when and why?
Day 27 What’s the best thing going for you right now?
Day 28 What if you were pregnant or got someone pregnant, what would you do?
Day 29 Something you hope to change about yourself. And why.
Day 30 A letter to yourself, tell yourself EVERYTHING you love about yourself
Day 01: Something you hate about yourself
Ugh. I feel like this list could go on forever and ever, and I hate that, for sure: that I'm not more happy with who I am or how I look or more comfortable in my own skin. Whenever I'm reading a book and a character is described just that way - "You could tell she was comfortable in her own skin" - I always think "But how? How did she get comfortable just being who she was? How is that even possible?"
I know it must be possible - I think I know enough people that are just who they are and that's that to know it is possible. But it seems like something that's possible for other people . Not for me. Maybe, some day. But if I'm being honest, I don't really think so. I don't really believe that I'll ever just be happy with how I look, or how I act. Or -if not happy, exactly - but happy enough.
Happy enough not to hate that I need to ask for help for things that I "should be" capable of doing. Happy enough not to hate that I can't drive myself (or walk myself) from point A to point B and have to depend on other people all the time. Happy enough to not hate the way I cry when I'm arguing with someone and how weak it makes me feel. Happy enough not to want to burn the piles down around me rather than hate how I procrastinate dealing with them.
Happy enough not to cringe when I see myself in the mirror in the morning. This is a new one for me, mostly because, at my house, what few mirrors we have are all at standing up person's eye level. If I want to look in the mirror, I have to make an extra effort, so I don't often look in the mirror unless there's a reason for it. But here at Grandmother's house there is a huge honking mirror in the little bathroom. I'm talking about an entire wall's worth of vanity mirror, so that if you were standing in the middle of the bathroom floor and stretched your arms out to the side to touch the walls (which you can do because that's exactly how small the bathroom is), you'd be able to see the whole thing in the mirrors. Which also means that you can see yourself from just about anywhere, including sitting down. And this is the only bathroom I have access to, and so, when I roll in there first thing in the morning, I see myself.
And I find that I am often not pleased with how I look. I even thought "holy crap: that's what you look like today. Ew" the other day. "Ew." Was an actual thought I had about myself, and it made me realize how harshly I judge my physical appearance. It's been on my mind ever since.
I knew I had issues with my weight - being on steroids and the Lyrica and god knows how many other drugs has definitely screwed with my poundage - but it usually only bothers me when I have to go shopping for something nice and nothing nice fits over my boobs. Or when I'm in a group picture - particularly one with all my sisters, and I realize I could put three of them together to equal me (almost, anyways). But, for the most part, it doesn't enter my mind - the good thing about having a body where you have to be measuring things against pain or exhaustion or sick levels in matter of importance is that you realize that being heavy does not equal the end of the world. Sure I'm a little bigger than I'd like to be, comfortably, but it doesn't physically hurt, so it moves way down on the list of things that concern me on a day to day basis.
It hardly ever even makes it onto the list, to be honest with you. I'm not generally embarassed by it and see no reason why I, or anyone else, should be - so it worries me that I can think so poorly about my appearance.
And it's not just the weight - it's the stuff I don't have the energy to devote to fixing: I'm lucky if I ran a comb through my hair twice last week (clip it up and be done with it is my usual motto), I don't wear makeup (although I could often use it) or nice clothes (nice and comfortable are apparently fashion's version of oil and water). I look... tired. And worn out.
And - even though I am tired and sore and worn out - I hate that I look that way. And I hate that it matters to me how I look at all, because if you had asked me a month ago, when I wasn't having to face myself in the mirror every day, I would've said it didn't bother me at all. I don't want it to bother me at all.
So I'm trying to look myself in the mirror now and think at least one positive thing, even if it's just "Look, you made it all the way in here, and you didn't think you were going to get this far today, so that's something" or "You have your mother's eyes, you know, so if you can't say those aren't pretty because she has gorgeous eyes. It's ok that they're tired today, they're still her eyes." Or - as was the case one day last week - "We are not leaving this room until you can think of something nice to say to yourself, you stubborn ass. Because if Lil Girl looked at herself in the mirror and thought "ew," even once, your heart would break, and the least you can do is figure out how to make the same be true for yourself."
I hate that I haven't figured it all out yet, I guess is what I'm saying.
Day 01 Something you hate about yourself.
Day 02 Something you love about yourself.
Day 03 Something you have to forgive yourself for.
Day 04 Something you have to forgive someone for.
Day 05 Something you hope to do in your life.
Day 06 Something you hope you never have to do.
Day 07 Someone who has made your life worth living for.
Day 08 Someone who made your life hell, or treated you like shit.
Day 09 Someone you didn’t want to let go, but just drifted.
Day 10 Someone you need to let go, or wish you didn’t know.
Day 11 Something people seem to compliment you the most on.
Day 12 Something you never get compliments on.
Day 13 A band or artist that has gotten you through some tough ass days. (write a letter.)
Day 14 A hero that has let you down. (letter)
Day 15 Something or someone you couldn’t live without, because you’ve tried living without it.
Day 16 Someone or something you definitely could live without.
Day 17 A book you’ve read that changed your views on something.
Day 18 Your views on gay marriage.
Day 19 What do you think of religion? Or what do you think of politics?
Day 20 Your views on drugs and alcohol.
Day 21 (scenario) Your best friend is in a car accident and you two got into a fight an hour before. What do you do?
Day 22 Something you wish you hadn’t done in your life.
Day 23 Something you wish you had done in your life.
Day 24 Make a playlist to someone, and explain why you chose all the songs. (Just post the titles and artists and letter)
Day 25 The reason you believe you’re still alive today.
Day 26 Have you ever thought about giving up on life? If so, when and why?
Day 27 What’s the best thing going for you right now?
Day 28 What if you were pregnant or got someone pregnant, what would you do?
Day 29 Something you hope to change about yourself. And why.
Day 30 A letter to yourself, tell yourself EVERYTHING you love about yourself
Monday, September 27, 2010
A learning experience is one of those things that says, “You know that thing you just did? Don’t do that"*
I can't believe I've left this post up for this long, since, in my head, I've written about thirty six posts since last week. Unfortunately for my blog (or perhaps fortunately, since my brain isn't exactly in tip top condition lately), my computer doesn't travel as well as I would like it to, and there's no internet connection at the rehab. I don't know what their problem is, since, if I were using their facilities, I would definitely need the distraction.
Anyways, my grandmother is doing very well, thank you: She's got a discharge date set for this Thursday, and her improvements have been quite great and quite quick. She still needs to use the walker, which is absolutely going to be a point of contention once she's home and isn't on her best "let me out of here/ see what a good patient I am!" behavior, but we'll deal with that when we get to it. In the meantime, she's doing really well. (Thankfully.)
There's been a lot of other family drama - some of which I can't talk about here and some of which I just don't have the energy to go into right now - but I have been trying to keep what energy I do have focused on caring for my grandmother and putting it where it can do the most good.
As for me, I'm ... I don't even know how I am. Up in the air, like one of those little juggling balls, going round and round and up and down under somebody else's control. During the (not continuous, grand total of) forty-five minutes I slept the other night, I had a very vivid dream of myself, sitting in my uncle's car in the passenger seat. We were making the twenty minute trip we make four times a day (twice up, twice back, because he refuses to eat any place but home, and don't even get me started on that), traveling the now-familiar route. In the dream, I seemed normal and everything was fine, until suddenly, I just reached over and pulled the door handle - very calmly - and - like someone escaping a kidnapping - ninja-rolled my way out of the car. I landed on my feet and just walked away.
It wasn't until I felt the gigantic surge of relief in the dream that I realized just how hard this whole situation has been. How out of my own control I feel my life has gotten - not just right this minute, but in the grand scheme of things.
And there are, obviously, things in my life that I can do nothing about - my grandmother's stroke, my own illnesses, having to move, losing people I love - Those things are going to be there, are going to happen, no matter how hard I try to will them away, no matter how much I don't want them to be. I can't control those things. But I kind of just realized that I'm still trying to control them anyways... and that I'm fighting a losing battle.
Which doesn't mean I'm giving up - far from it. In fact, it just means that I have to do a better job of figuring out what I am in control of, and what I do have power over, so I can do a better job of focusing on those things.
I know: this seems like the simplest thing ever, and it also seems like something I should have gotten into my thick skull long before now, but it really is an ongoing thing - it isn't as if I haven't been working on this for the past fifteen years, it's more like I am re-realizing that I am focusing my energies in the wrong direction, and that I need to pay more attention to fixing that.
The more I worry about how nobody else is coming to visit Grandmother - I am one of seventeen grandchildren, who came from 9 children originally - the more upset I get. (Yes, the 17 and 9 are spread out across the country, but there are at least eight of us within easily driven distance, and at least three more of her kids. Total who've shown up? Three - each visiting once, for a relatively short period of time.) But getting mad about it, or feeling resentful that they're not going out of their way to get here does me no good. It does her no good. All I have to do is show up, get the word out, keep doing what I can do, and let the rest go. If other people make (what I see as) poor choices, then it's their loss. It's their decision, and there's nothing I can do to make them realize that they are missing out. I don't understand it, but I don't have to, either. I just have to be there for her, and hope that it is enough.
The more I fret and churn over a vicious fight between my two sisters, the less helpful I am to anybody - On a recent day, I managed to "ruin" both of their days by bringing up the other one, and ended every conversation in tears. It's not helping them, and it certainly isn't helping me. I won't stop trying to help them figure out how to move on (I don't think I can: it would hurt too much), but I have to realize that it isn't in my control. I can only do what I think needs to be done, say what I think needs to be said, and then leave the rest up to them. If they're not ready to hear it - as is obvious by the fact that I always wind up hurting them and myself when I try to get my point across - then I can't do anything more but be here when they're ready for me.
I can chatter till the cows come home, because empty space in a conversation makes me a tad bit uncomfortable, but I'm never going to make my uncle say a single word he doesn't want to say. So I better learn to appreciate that there is such a thing as companionable silence, and figure out how to enjoy it.
Now doesn't all that sound so lovely and mature and easy?
Yeah: the writing of it always makes me sound like I've figured it all out, but in reality? I'm going bit by bit, trial by trial, day by day.
(Although I have really figured out how to like silence. Sometimes I write the best blog posts in my head when he and I are just sitting in the same space, being together, but not having to say anything - how'd you like this one?)
*Douglas Adams
Anyways, my grandmother is doing very well, thank you: She's got a discharge date set for this Thursday, and her improvements have been quite great and quite quick. She still needs to use the walker, which is absolutely going to be a point of contention once she's home and isn't on her best "let me out of here/ see what a good patient I am!" behavior, but we'll deal with that when we get to it. In the meantime, she's doing really well. (Thankfully.)
There's been a lot of other family drama - some of which I can't talk about here and some of which I just don't have the energy to go into right now - but I have been trying to keep what energy I do have focused on caring for my grandmother and putting it where it can do the most good.
As for me, I'm ... I don't even know how I am. Up in the air, like one of those little juggling balls, going round and round and up and down under somebody else's control. During the (not continuous, grand total of) forty-five minutes I slept the other night, I had a very vivid dream of myself, sitting in my uncle's car in the passenger seat. We were making the twenty minute trip we make four times a day (twice up, twice back, because he refuses to eat any place but home, and don't even get me started on that), traveling the now-familiar route. In the dream, I seemed normal and everything was fine, until suddenly, I just reached over and pulled the door handle - very calmly - and - like someone escaping a kidnapping - ninja-rolled my way out of the car. I landed on my feet and just walked away.
It wasn't until I felt the gigantic surge of relief in the dream that I realized just how hard this whole situation has been. How out of my own control I feel my life has gotten - not just right this minute, but in the grand scheme of things.
And there are, obviously, things in my life that I can do nothing about - my grandmother's stroke, my own illnesses, having to move, losing people I love - Those things are going to be there, are going to happen, no matter how hard I try to will them away, no matter how much I don't want them to be. I can't control those things. But I kind of just realized that I'm still trying to control them anyways... and that I'm fighting a losing battle.
Which doesn't mean I'm giving up - far from it. In fact, it just means that I have to do a better job of figuring out what I am in control of, and what I do have power over, so I can do a better job of focusing on those things.
I know: this seems like the simplest thing ever, and it also seems like something I should have gotten into my thick skull long before now, but it really is an ongoing thing - it isn't as if I haven't been working on this for the past fifteen years, it's more like I am re-realizing that I am focusing my energies in the wrong direction, and that I need to pay more attention to fixing that.
The more I worry about how nobody else is coming to visit Grandmother - I am one of seventeen grandchildren, who came from 9 children originally - the more upset I get. (Yes, the 17 and 9 are spread out across the country, but there are at least eight of us within easily driven distance, and at least three more of her kids. Total who've shown up? Three - each visiting once, for a relatively short period of time.) But getting mad about it, or feeling resentful that they're not going out of their way to get here does me no good. It does her no good. All I have to do is show up, get the word out, keep doing what I can do, and let the rest go. If other people make (what I see as) poor choices, then it's their loss. It's their decision, and there's nothing I can do to make them realize that they are missing out. I don't understand it, but I don't have to, either. I just have to be there for her, and hope that it is enough.
The more I fret and churn over a vicious fight between my two sisters, the less helpful I am to anybody - On a recent day, I managed to "ruin" both of their days by bringing up the other one, and ended every conversation in tears. It's not helping them, and it certainly isn't helping me. I won't stop trying to help them figure out how to move on (I don't think I can: it would hurt too much), but I have to realize that it isn't in my control. I can only do what I think needs to be done, say what I think needs to be said, and then leave the rest up to them. If they're not ready to hear it - as is obvious by the fact that I always wind up hurting them and myself when I try to get my point across - then I can't do anything more but be here when they're ready for me.
I can chatter till the cows come home, because empty space in a conversation makes me a tad bit uncomfortable, but I'm never going to make my uncle say a single word he doesn't want to say. So I better learn to appreciate that there is such a thing as companionable silence, and figure out how to enjoy it.
Now doesn't all that sound so lovely and mature and easy?
Yeah: the writing of it always makes me sound like I've figured it all out, but in reality? I'm going bit by bit, trial by trial, day by day.
(Although I have really figured out how to like silence. Sometimes I write the best blog posts in my head when he and I are just sitting in the same space, being together, but not having to say anything - how'd you like this one?)
*Douglas Adams
Friday, May 14, 2010
So I'm sitting here
at quarter to three in the morning, after playing Family Feud on Facebook, and browsing on Etsy long enough to add a whole new page of favorite things, and typing up two long overdue, rambly and probably non-sensical e-mails, wondering what the hell I am going to do.
This surgery is on Friday, and - as of today - that is still a go. The liver issues seem to be under control (2nd set of liver tests = no problem, just like I suspected they would be), but I've got another round to go before I get the all-clear.
I do not like to be in limbo, and yet I seem to be spending an awful lot of time there.
So I am assuming that I am having the surgery on Friday, as in a week from today, and holy crap that is soon... which means I now have to figure out all of the things I need to do before Friday, in order to not have to worry about them after the surgery.
I've been stockpiling books (which I do anyways), and magazines that take little thought or effort. I've got a week or two worth of funny shows on my DVR that I specifically didn't watch, and a Netflix queue (instant and through mail) as long as my to-do list. I'm going to fill out all the paperwork for anything that might be due in week or two following the surgery - bills to be paid, mail to send, etc - today, and I'm saving the major clean up for Thursday, because I know I'll just mess everything up again anyways if I do it now.
I wanted to have a sleepover this weekend with No Longer Youngest Nephew, partly because I don't know when I'll be up to it again, and partly because I knew he'd be a great distraction, but it turns out he's got a Sunday baseball game, so (since I don't drive), that fell through. I've also invited College Roommate/Best Friend to come and visit, but she's usually weekend booked all the way through the end of the school year, so I'm not holding out much hope there either.
But I think if it's just me sitting here, things could get pretty dicey pretty quickly, so I'm just going to think of LOTS of things that need to be done between now and then, so I don't have time to obsess. Because obsessing is something I can be very good at, and it could lead to chickening out, which I am determined not to do, so, therefore (and, Off Topic: I really think the keyboard ought to have a Therefore symbol - maybe instead of the #... those three little circles in the shape of a triangle that came in so handy in freakin geometry, I could use those on my keyboard, just saying): Keeping Busy.
On the one hand, this is relatively minor surgery.
On the other hand, this is my body, which never reacts as the doctors say it 'should', and my face, which is already in enough pain, and myself, which also has enough pain and exhaustion to deal with, thank you very much... so this is the hand that will lead to the obsessing.
I'm trying to focus on that first hand instead. And this magical third hand that appeared out of nowhere to remind me that I will be under anesthesia, which means I will get some SLEEP. Real, actual, knock-me-out for a few hours sleep. The kind that my body has completely forgotten how to manufacture, and I will take whatever I can get. Artificially induced or not, I'm going to focus on the fact that a week from today, I will be taking a NAP. I know I cannot articulate exactly how awesome that will be, but let's just say that it almost makes me forget that they're going to be cutting out pieces of my body and sticking metal hooks up my nose. Almost.
In the meantime, I've got the itchy scratchies, but no actual energy to work them off, so I hope you'll excuse a few rambling blog posts, particularly if they're just serving as poor reminders to myself that this is not something to get all wimpy about.
Or about how I played Ms Pacman for the better part of two hours yesterday, and had over a million points because this was an online fake version of the game and when you ate the little 'turn the ghosts blue' pellets, the ghosts never changed back to their original colors unless you ate them, thus giving you the run of the board for ridiculously long periods of time. Ms. Pacman Champion, right here.
This surgery is on Friday, and - as of today - that is still a go. The liver issues seem to be under control (2nd set of liver tests = no problem, just like I suspected they would be), but I've got another round to go before I get the all-clear.
I do not like to be in limbo, and yet I seem to be spending an awful lot of time there.
So I am assuming that I am having the surgery on Friday, as in a week from today, and holy crap that is soon... which means I now have to figure out all of the things I need to do before Friday, in order to not have to worry about them after the surgery.
I've been stockpiling books (which I do anyways), and magazines that take little thought or effort. I've got a week or two worth of funny shows on my DVR that I specifically didn't watch, and a Netflix queue (instant and through mail) as long as my to-do list. I'm going to fill out all the paperwork for anything that might be due in week or two following the surgery - bills to be paid, mail to send, etc - today, and I'm saving the major clean up for Thursday, because I know I'll just mess everything up again anyways if I do it now.
I wanted to have a sleepover this weekend with No Longer Youngest Nephew, partly because I don't know when I'll be up to it again, and partly because I knew he'd be a great distraction, but it turns out he's got a Sunday baseball game, so (since I don't drive), that fell through. I've also invited College Roommate/Best Friend to come and visit, but she's usually weekend booked all the way through the end of the school year, so I'm not holding out much hope there either.
But I think if it's just me sitting here, things could get pretty dicey pretty quickly, so I'm just going to think of LOTS of things that need to be done between now and then, so I don't have time to obsess. Because obsessing is something I can be very good at, and it could lead to chickening out, which I am determined not to do, so, therefore (and, Off Topic: I really think the keyboard ought to have a Therefore symbol - maybe instead of the #... those three little circles in the shape of a triangle that came in so handy in freakin geometry, I could use those on my keyboard, just saying): Keeping Busy.
On the one hand, this is relatively minor surgery.
On the other hand, this is my body, which never reacts as the doctors say it 'should', and my face, which is already in enough pain, and myself, which also has enough pain and exhaustion to deal with, thank you very much... so this is the hand that will lead to the obsessing.
I'm trying to focus on that first hand instead. And this magical third hand that appeared out of nowhere to remind me that I will be under anesthesia, which means I will get some SLEEP. Real, actual, knock-me-out for a few hours sleep. The kind that my body has completely forgotten how to manufacture, and I will take whatever I can get. Artificially induced or not, I'm going to focus on the fact that a week from today, I will be taking a NAP. I know I cannot articulate exactly how awesome that will be, but let's just say that it almost makes me forget that they're going to be cutting out pieces of my body and sticking metal hooks up my nose. Almost.
In the meantime, I've got the itchy scratchies, but no actual energy to work them off, so I hope you'll excuse a few rambling blog posts, particularly if they're just serving as poor reminders to myself that this is not something to get all wimpy about.
Or about how I played Ms Pacman for the better part of two hours yesterday, and had over a million points because this was an online fake version of the game and when you ate the little 'turn the ghosts blue' pellets, the ghosts never changed back to their original colors unless you ate them, thus giving you the run of the board for ridiculously long periods of time. Ms. Pacman Champion, right here.
Friday, March 26, 2010
You know what I am really good at?
Drafts. I rock at first drafts; love second drafts, have been known to have as many as 16 drafts of something before I am even close to happy with it. I was that annoying kid at school who would enjoy the peer editing conferences, knowing that I would get another chance to fix all the things that needed to be fixed. I have about 7200 of them sitting around right now: A first draft of a children's book I started writing 12 years ago; a hilariously poor batch of poems. A first draft of a letter to an old friend, two or three drafts of outrage (or, less likely, praise) to my senators; one for my aunt, sitting around waiting for me to add pictures. Hundreds of posts sitting in the draft folder. Probably the same number of e-mails sitting in that drafts folder. I go through drafts and drafts and drafts of every To Do list - with a lot more carry over and a lot less crossing off than I would like, unfortunately.
The only kind of draft I am not exceptionally good at? Final drafts.
And do you know that it has taken me the better part of my 30 years on the planet to make the connection between my labor intensive and research rich drafting process and plain old procrastination?
"But I'm working on it!" I can say to myself - "I'm re-thinking it, I'm re-working it, it's still percolating, it's not all the way there yet, not Done with a capital D Done." Right, and it's often true that things need more tweaking. But there comes a point where you are just holding on to something, just keeping it your control for as long as possible. At some point, though?
You need to finish things. You need to make the decision, write "The End", cross everything off the list (or decide it's not worth completing and toss it), stick it in the mail and sent it off.
One of the things that I've crossed off my list this week is deciding to have the sinus surgery. After my appointments last week, I did a bunch of research, I wrote about it here (once or twice), I asked for opinions and spent hours talking to someone I (only sort of) know who had a similar procedure. I wrote pro/con lists (yes: I actually do this), and argued with myself for as long as I could. Then I procrastinated a little bit because the answer I had wound up with was not the answer I wanted to wind up with. And then I passed in my final draft, and told the doctor to sign me up.
I'm still nervous, and I don't like that I have to have it, but it's pretty clear that I have to have it. I still don't know when, but that's the doctor's fault not mine. (His surgical nurse is supposed to get back to me next week with a date.) The good news is that my case is severe enough to require a special kind of sinus surgery, which can be done on an outpatient basis (Do not even ask me: the less severe surgery is inpatient, mine is all laparoscopic and laser-y, and so then I get to go home on the same day. Yay.) Also on the good news side of things is that the surgical nurse seemed to understand that liquid pain medication will be very important (bc I'm also getting my tonsils out. Did I forget to mention that? Yeah, they were what started this whole damn thing in the first place.) and was very clear on the fact that, since I won't be able to take my regular pain meds for at least a day or two, then I'm going to need alternatives.
So: final decision made. Now if I could just get the damn computer out of draft mode (Current draft title: "You cannot afford a Mac: choose again"), then I'd be all set.
The only kind of draft I am not exceptionally good at? Final drafts.
And do you know that it has taken me the better part of my 30 years on the planet to make the connection between my labor intensive and research rich drafting process and plain old procrastination?
"But I'm working on it!" I can say to myself - "I'm re-thinking it, I'm re-working it, it's still percolating, it's not all the way there yet, not Done with a capital D Done." Right, and it's often true that things need more tweaking. But there comes a point where you are just holding on to something, just keeping it your control for as long as possible. At some point, though?
You need to finish things. You need to make the decision, write "The End", cross everything off the list (or decide it's not worth completing and toss it), stick it in the mail and sent it off.
One of the things that I've crossed off my list this week is deciding to have the sinus surgery. After my appointments last week, I did a bunch of research, I wrote about it here (once or twice), I asked for opinions and spent hours talking to someone I (only sort of) know who had a similar procedure. I wrote pro/con lists (yes: I actually do this), and argued with myself for as long as I could. Then I procrastinated a little bit because the answer I had wound up with was not the answer I wanted to wind up with. And then I passed in my final draft, and told the doctor to sign me up.
I'm still nervous, and I don't like that I have to have it, but it's pretty clear that I have to have it. I still don't know when, but that's the doctor's fault not mine. (His surgical nurse is supposed to get back to me next week with a date.) The good news is that my case is severe enough to require a special kind of sinus surgery, which can be done on an outpatient basis (Do not even ask me: the less severe surgery is inpatient, mine is all laparoscopic and laser-y, and so then I get to go home on the same day. Yay.) Also on the good news side of things is that the surgical nurse seemed to understand that liquid pain medication will be very important (bc I'm also getting my tonsils out. Did I forget to mention that? Yeah, they were what started this whole damn thing in the first place.) and was very clear on the fact that, since I won't be able to take my regular pain meds for at least a day or two, then I'm going to need alternatives.
So: final decision made. Now if I could just get the damn computer out of draft mode (Current draft title: "You cannot afford a Mac: choose again"), then I'd be all set.
Wednesday, January 13, 2010
It's been about a week and a half,
since I've been here, and I apologize for that.
But I think I'm going to skip the long explanations that explain nothing, really, and just say: my brain has been tired, and I have not felt like ordering it to work. Which is fine, really, except that all the posts I wrote in my tired head during the past week are now gone into the ether, and I have to come up with something to write because we all know the longer I go without posting, the harder it gets to post.
So, onto today's post:
Did you know that my most popular post, the post that gets the most comments and hits (at least one a day, I am not kidding you) is this one? 42 comments, as of today. Apparently, something I thought only I was careless enough to do (accidentally getting gel deodorant squirted into my eye) is pretty damn common. The number of people who find me after Googling "got deodorant in my eye" is very high... that search is, by far, my biggest referral.
I'm not entirely sure I'm happy to be known on the Internet as the girl who got deodorant in her eye, but I'm glad that I'm not the only one. I'm also happy to let people know that, while I have no medical training, and cannot guarantee anything, all of the people who searched and found me after getting deodorant in their eyes, at the very least, saw well enough to type. So, while it stings worse than shampoo or most other things you may have accidentally got in your eyeball (I will refrain from judgement here), it will probably get better relatively quickly. If I remember correctly, my eye was fine after a few hours, and only red for a day or so.
Not like this week, in which I did absolutely nothing whatsoever to my damn eye, and haven't been able to see clearly for three days. I also can't keep the eye open any length of time and have taken to wearing my sunglasses inside the house. Although today, I just shut off all sources of light - I am typing this on it's darkest setting, and occasionally peeking behind a piece of paper to check for misspellings - and confined myself to a dark room. Where I couldn't read or write or watch TV or any of the things I usually do to distract myself from my normal pain, so guess what kind of a week I have been having? (*And, oh, how this is its own post, readers: distraction as pain management technique, and how the loss of those distractions is like flaying yourself raw and then swimming in the ocean.)
I honestly have no idea what got in there, because it has felt like a little crumb of something is just under my eyelid, but I don't see anything. I thought about going to the doctor, but what do I say: "My eye hurts, but I don't know why?" I am giving it until tomorrow to straighten up, though... if it ain't better/improving by then, screw it, I'm calling. And then, of course, my eye got all red and weepy (sorry - disgusting, I know), and for whatever reason when my eye gets watery, my nose starts to run, and ALSO, the more I blow my nose, the more my face gets all broken out, so now my nose and one eye are all red, and I've got little cuts all over the place, so basically I look like I've been fighting with a very angry cat that I am also allergic to, or something. Tres attractive, I am sure.
On the plus side, I can't look in the mirror, because it hurts to open my eye, so there's that.
I think it was at it's worst this morning, though, because it hurt so bad I actually did something about it. I sent my dad to the store for some Visine (even though it gives me a rash on my skin, I would deal with that for an eye that functions), and he brought home an eye wash/eye cup thing instead. Have you ever had to do this? The directions are simple and straightforward - fill cup with solution, put cup on eye, tilt head back, OPEN EYE AND ROLL IT AROUND with the solution pouring right into it, empty cup, pat eye dry.
Simple, right?
Except that you are talking to the only person in the history of my optometrist to learn how to put contact lenses on by finally being allowed to do it without looking. I was in my 20s, and it took 3 lessons. Because the guy who was giving the lessons kept saying, "You have to look at your finger when you're putting it in your eye!" and "I have taught 4 year olds how to do this, now look at your finger!" That approach did not work for me, so finally I said to him, "How about if we try it this way?" and I looked in the opposite direction and snuck it in my eye while I wasn't looking and then blinked a few times: voila! Mission accomplished. (Off Topic - this is also the way I taught myself how to swallow pills: put food/drink in your mouth first, then slip the pill in, and act like it isn't there and just swallow your food/drink. Easy peasy.)
So the whole, open your eye and swish the water around in it, thing? Not my cup of tea. Basically I wound up having to tip my head back, and then blink really fast for as long as I could. What? It seems to have helped, so why knock it?
My eye is still puffy and red and hurting, but it's getting better, I think.
This concludes my second - and hopefully last post about stuff getting in my eye (and if I ever figure out what it was this time, trust me that I will avoid that substance like the eye plague it truly is). Enjoy the rest of your day, and I'll try and come up with something less gross for tomorrow's post.
But I think I'm going to skip the long explanations that explain nothing, really, and just say: my brain has been tired, and I have not felt like ordering it to work. Which is fine, really, except that all the posts I wrote in my tired head during the past week are now gone into the ether, and I have to come up with something to write because we all know the longer I go without posting, the harder it gets to post.
So, onto today's post:
Did you know that my most popular post, the post that gets the most comments and hits (at least one a day, I am not kidding you) is this one? 42 comments, as of today. Apparently, something I thought only I was careless enough to do (accidentally getting gel deodorant squirted into my eye) is pretty damn common. The number of people who find me after Googling "got deodorant in my eye" is very high... that search is, by far, my biggest referral.
I'm not entirely sure I'm happy to be known on the Internet as the girl who got deodorant in her eye, but I'm glad that I'm not the only one. I'm also happy to let people know that, while I have no medical training, and cannot guarantee anything, all of the people who searched and found me after getting deodorant in their eyes, at the very least, saw well enough to type. So, while it stings worse than shampoo or most other things you may have accidentally got in your eyeball (I will refrain from judgement here), it will probably get better relatively quickly. If I remember correctly, my eye was fine after a few hours, and only red for a day or so.
Not like this week, in which I did absolutely nothing whatsoever to my damn eye, and haven't been able to see clearly for three days. I also can't keep the eye open any length of time and have taken to wearing my sunglasses inside the house. Although today, I just shut off all sources of light - I am typing this on it's darkest setting, and occasionally peeking behind a piece of paper to check for misspellings - and confined myself to a dark room. Where I couldn't read or write or watch TV or any of the things I usually do to distract myself from my normal pain, so guess what kind of a week I have been having? (*And, oh, how this is its own post, readers: distraction as pain management technique, and how the loss of those distractions is like flaying yourself raw and then swimming in the ocean.)
I honestly have no idea what got in there, because it has felt like a little crumb of something is just under my eyelid, but I don't see anything. I thought about going to the doctor, but what do I say: "My eye hurts, but I don't know why?" I am giving it until tomorrow to straighten up, though... if it ain't better/improving by then, screw it, I'm calling. And then, of course, my eye got all red and weepy (sorry - disgusting, I know), and for whatever reason when my eye gets watery, my nose starts to run, and ALSO, the more I blow my nose, the more my face gets all broken out, so now my nose and one eye are all red, and I've got little cuts all over the place, so basically I look like I've been fighting with a very angry cat that I am also allergic to, or something. Tres attractive, I am sure.
On the plus side, I can't look in the mirror, because it hurts to open my eye, so there's that.
I think it was at it's worst this morning, though, because it hurt so bad I actually did something about it. I sent my dad to the store for some Visine (even though it gives me a rash on my skin, I would deal with that for an eye that functions), and he brought home an eye wash/eye cup thing instead. Have you ever had to do this? The directions are simple and straightforward - fill cup with solution, put cup on eye, tilt head back, OPEN EYE AND ROLL IT AROUND with the solution pouring right into it, empty cup, pat eye dry.
Simple, right?
Except that you are talking to the only person in the history of my optometrist to learn how to put contact lenses on by finally being allowed to do it without looking. I was in my 20s, and it took 3 lessons. Because the guy who was giving the lessons kept saying, "You have to look at your finger when you're putting it in your eye!" and "I have taught 4 year olds how to do this, now look at your finger!" That approach did not work for me, so finally I said to him, "How about if we try it this way?" and I looked in the opposite direction and snuck it in my eye while I wasn't looking and then blinked a few times: voila! Mission accomplished. (Off Topic - this is also the way I taught myself how to swallow pills: put food/drink in your mouth first, then slip the pill in, and act like it isn't there and just swallow your food/drink. Easy peasy.)
So the whole, open your eye and swish the water around in it, thing? Not my cup of tea. Basically I wound up having to tip my head back, and then blink really fast for as long as I could. What? It seems to have helped, so why knock it?
My eye is still puffy and red and hurting, but it's getting better, I think.
This concludes my second - and hopefully last post about stuff getting in my eye (and if I ever figure out what it was this time, trust me that I will avoid that substance like the eye plague it truly is). Enjoy the rest of your day, and I'll try and come up with something less gross for tomorrow's post.
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